Treatment for Myasthenia Gravis

I was diagnosed with Myasthenia Gravis on 02/21/2019 which is a rare autoimmune blood disease.  I’m currently on pyridostigmine and prednisone which I’m not responding to. I’ve also received 5 plasmapheresis which I’m not responding to  so the next step is a thymectomy ASAP. Thymectomy is a procedure where your throat is cut open and your thymus gland is removed. I’ve lost my job which means I no longer have insurance and I can’t cover the surgery I’m about to receive which mean I have to worry about medical bills, I’m getting evicted, and worse It May turn into Myasthenia crisis. In addition, if the surgery go well I still will need surgery to open my eyes as well as align them. I don’t know why this disease chose me. I have a disabled mother that lives with me. I’m only 32 and have worked hard my whole life and I know things happen but it’s so hard to have faith when I know there’s no cure for my disease it’s so rare it took 8 months to get an diagnosis. Overall I’m still pray that God has mercy on me and spare me. I want to thank everyone and advance for taking the time to hear my story and anything will help reach my goal. I just want to be normal again this disease has affected me so much I’m embarrassed to see anyone look at me I don’t even feel human. Myasthenic crisis happens when the respiratory muscles get too weak to move enough air in and out of the lungs. The patient is unable to breathe and a machine (ventilator) is needed to help breathe for the patient. The ventilator may do this through a tube into the airway (endotracheal intubation) or a tight-fitting mask on the face (Bi-PAP). Myasthenic crisis involves only the respiratory muscles so it is different from an MG flare (exacerbation). An MG flare is worsening of some or all muscles throughout the body, not just the muscles used for breathing. MG flares vary from patient to patient but may include worsened double vision, increased arm weakness, falling, unsteady walking, or having a hard time swallowing. Many muscles throughout the body may weaken during an MG exacerbation but myasthenic crisis refers specifically to severe, life-threatening weakness of respiratory muscles. Certain issues are known to trigger (cause) myasthenic crisis. (see page 2, Conditions ...Trigger Weakness) Myasthenic crisis can develop slowly or quickly. It is important for patients to get medical care right away when symptoms of myasthenic crisis develop.
A patient may be admitted to the hospital with a diagnosis of myasthenic crisis even though a ventilator is not needed yet. This is because aggressive treatment is needed in order to prevent full myasthenic crisis and to keep the patient breathing without a machine.

#curemyasthnicmg https://www.uptodate.com/contents/myasthenic-crisis

Myasthenia gravis is a relatively rare neuromuscular disease in which the voluntary muscles easily become tired and weak because there is a problem with how the nerves stimulate the contraction of muscles. It is an autoimmune disorder.
"Myasthenia gravis" literally means "grave muscle weakness," but many cases are mild, and life expectancy is normal.

The muscles around the eyes tend to be affected first, causing the eyelids to droop. Patients may experience double vision, weakness in the arms and legs, and difficulties chewing, swallowing, speaking, and breathing. Involuntary muscles, such as the heart muscles, are not affected.

Symptoms often worsen with physical activity and improve after resting or a good night's sleep. There is no cure, but treatment can relieve and even remove symptoms.

The condition affects 14 to 20 people in every 100,000 in the United States, or between 36,000 and 60,000 people. It can happen at any age, but it is more likely to affect women before the age of 40 years, and men after the age of 60 years.