TEAM JAKE

$26,908 of $5,000 goal

Raised by 516 people in 2 months
Holly Rice Weaver  GOUVERNEUR, NY
A year and a half ago, our family received the worst possible news.  The baby of our family, six year old Jake Ferrick, had Stage 4 High Risk Neuroblastoma.  This was the beginning of our horrible nightmare, and unfortunately we are all still living in that nightmare.  Jake underwent sixteen months of cancer treatment at Galisano's Children's Hospital in Syracuse, NY.  He had extensive chemotherapy for months, radiation treatment, two stem cell transplants, and immunotherapy.  He lost a considerable amount of weight.  He lost his ability to walk, and he was unable to attend school during his entire first grade year.  We were so hopeful for the ending scans to show us that all this horrible treatment had taken away this nightmare.  Unfortunately, our hopes disappeared when we found out that he still had extensive cancer left in his hip.  Jake's doctors told us that they had done all that they could do for him, and he would have to be referred to the Children's Hospital of Philadelphia, one of the best Neuroblastoma Research hospitals in the country.  Two weeks later, Jake and his parents were on the way to Philadelphia.  While there he underwent a new treatment called MIBG therapy where radioactive medication was infused through his body to hopefully begin a new regimen of cancer therapy.  He also had a genetic study of his cancer by taking a small sample of tissue from inside his hip bone.  Apparently, Jake suffers from a mutated ALK gene which continues to produce cancer cells.  The doctors in Philadelphia are putting Jake into a clinical study where he can receive a medication that may be able to turn off this mutated gene.  But before he could qualify for the clinical trial, he had to be built up nutritionally.  Since he has been unable to eat much during this year and a half of treatment, he has become very thin and weak, so he has just been given a nasogastric tube which will infuse nutrition into his body hourly.  We are hoping and praying that this clinical trial will be the answer to our prayers and bring our little Jake back to us cancer free and healthy, but it is going to be a long drawn out uphill battle with many trips to Philadelphia starting again on December 4th.  We have been so blessed to have received both financial and emotional support from our awesome family, friends, and community.  The outpouring of love and support has been heartwarming over this year and a half.  But, we are afraid that all these trips to Philadelphia will be a huge financial burden to our family in the long run.  Angela and Jason, Jake's parents are very proud people, and have been extremely grateful to all the friends and family who have given them all this much needed support.  When we realized that this long uphill journey was no where near to being concluded, God placed it upon our hearts to start this page to hopefully be able to help this wonderful family of five financially.  Medical and travel costs have more than overwhelmed them.  Any donations would be used solely for these purposes.  We thank anyone who feels, in their heart, the need to give support to Jake, his parents Jason and Angela, and his siblings Christian and Vincenza.  The entire family thanks you from the bottom of our hearts.  May God bless you all.
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Update 8
Posted by Holly Rice Weaver
15 days ago
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As most people now know, things did not work out the way they were planned for Jake's last treatment option. He is now home on Hospice. He has been having pretty good days although he has been quite tired and sleeping a lot. But as I've always said, a person heals when sleeping. He's had lots of loving visitors, and family members from both sides are always around him. The community continues to create awe in our hearts with all their generosity and love shown towards all of us. Gouverneur is the most loving village in the universe as far as we are concerned. We continue to pray for a miracle because we have already witnessed God pull Jake out of some pretty dangerous situations. And Jake is always the fighter! Please continue to visit his Team Jake page for more frequent updates. We love Jake with all our heart and soul, and we know God is continually watching over him and the family providing love, strength, and healing. Thank you for continuing to pray for Jake's miracle. We love you all.❤
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Update 7
Posted by Holly Rice Weaver
1 month ago
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Well my little Pikachu is feeling good. We had a dr.s appointment on Wednesday and he didn't need any blood, his tumor is shrinking slowly and they are reducing his ketamine for pain. We are so happy. It's still going to be a long road, but things are improving. Thank you so much for all your support, prayers and love. It's working!! We are still having to travel to either Syracuse or Philadelphia every week but it is so worth it when we are finally seeing results to the new treatment medication. Please continue praying for our little Jake because your prayers brought our Christmas miracle from our loving God.
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Update 6
Posted by Holly Rice Weaver
1 month ago
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"It's only in our darkest hours that we can see the stars.." Thank you all so much for your prayers and love that got us through the worst day of our life on the Friday before Christmas. Due to excruciating pain from the large tumor encompassing his pelvis, hip, and leg, Jake's parents were advised that things did not look hopeful. Because of huge amounts of prayer and love from everyone and the expertise of the Pediatric Oncology and ICU doctors and nurses, and our Heavenly Father, he came out of that spiral and became quiet and comfortable because of a medication that is also used as a horse tranquilizer and a pre-anesthetic. He remains in a quiet state of comfort while we wait for other drugs to work on his cancer. We also wait for consultations from some of the top Neuroblastoma and Bone Cancer experts in the country to give his physicians advice on what to do next. We continue to pray for a miracle to get rid of this cancer, and we pray for his meditation from Philadelphia to show signs of shrinking this horrible disease. We are blessed to have family, friends, and people whom we have never met continue to give Jake prayers, emotional and financial support. We had "Jake's Christmas" yesterday and got actual smiles for the first time in many, many days. He loved being with his brother, sister, and his Cousins. This little boy is the strongest, hardest fighter I have ever known in my lifetime. He thanks you all for your prayers and love.
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Update 5
Posted by Holly Rice Weaver
2 months ago
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We are all so exhausted after such an emotional few days communicating with Jake and the family in Philadelphia for scans and tests. After the bad news we had in October, we were scared about what may have been discovered. Positive reports this time!! The scans show that the cancer is still concentrated in Jake's thigh and hip area. Although it is thriving and growing in that area, it did not show up anywhere else in his body. That is a Christmas miracle right there!! Unfortunately, he did not qualify for the clinical trial that he was being prepared for because he just wasn't healthy enough. This was very devastating for all of us. But when God closes a door, he opens a window. There is one drug left that his tumor seems to be sensitive to that will target his ATK genetic mutation and hopefully shrink his tumor. We are very optimistic that God gave us this other medication for a reason, because it's going to work. The scans also showed that he has been in so much pain because his hip bone has been completely separated from his hip socket due to the tumors growth. No wonder he has been suffering so much. They can't fix it until his tumor shrinks some, so we are hoping the tumor reacts quickly so that his pain can be reduced. They have increased his Methadone to manage his pain somewhat. So we are happy with what we learned. We have hope and faith that this medication will work, and there will be more options open in his treatment. Thank you all so much for all your support and prayers. That is what makes the difference. Please continue to pray for our little man that this medication will be the turning point in this horrible disease. We are going to have a happy Christmas this year, and pray that all of our team Jake friends do also. We are so blessed in so many ways.❤️
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Read a Previous Update
Angela M. Ferrick
2 months ago

There aren't words.....we are truly blessed. Thank you isn't nearly enough.

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Jason Ferrick
2 months ago

We are humbled by all the love and support we've received and continue to be. We are blessed to have such great support from family, friends and community!

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Crystal Conrad
3 days ago

I hope that everything goes well and I know that God is watching over you all.

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Kitty Headley
13 days ago

We are all fighting right along with you Jake. Lots of love and prayers to you

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Linda Markwick Bodah
15 days ago

I have never met Jake but I feel like I have. Your so blessed to have him in your life. He has a higher purpose - he is unique. My heart aches and if I could I would trade places with him in a heart beat....I pray and send love to you Holly and your family.

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Stephanie Noel
2 months ago

Jason and Angela Please let me know when you guys get to Philadelphia. We will come with goodies for all of you. We are only 50 mins away. Thinking of all of you.

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$26,908 of $5,000 goal

Raised by 516 people in 2 months
Created November 23, 2016
WG
$20
Warren Guettel
12 hours ago
NB
$25
nick bentz
12 hours ago
MK
$50
marek kurowski
12 hours ago
$50
David French
13 hours ago
BR
$100
Brian Reineking
13 hours ago
LN
$20
Lucas Nordyke
20 hours ago
$20
Adam Welu
22 hours ago
AD
$20
Anthony Delling
1 day ago
KP
$15
Kevin Pischke
1 day ago
MH
$20
Michael Hopkins
1 day ago
Angela M. Ferrick
2 months ago

There aren't words.....we are truly blessed. Thank you isn't nearly enough.

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Jason Ferrick
2 months ago

We are humbled by all the love and support we've received and continue to be. We are blessed to have such great support from family, friends and community!

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Crystal Conrad
3 days ago

I hope that everything goes well and I know that God is watching over you all.

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Kitty Headley
13 days ago

We are all fighting right along with you Jake. Lots of love and prayers to you

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Linda Markwick Bodah
15 days ago

I have never met Jake but I feel like I have. Your so blessed to have him in your life. He has a higher purpose - he is unique. My heart aches and if I could I would trade places with him in a heart beat....I pray and send love to you Holly and your family.

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Stephanie Noel
2 months ago

Jason and Angela Please let me know when you guys get to Philadelphia. We will come with goodies for all of you. We are only 50 mins away. Thinking of all of you.

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