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Taytem Lynn Awareness MPS/Hurlers

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This is our daughter Taytem and she was just recently diagnosed with a rare disease called Hurlers disease. If Taytem does not recieve treatment she will not live past 10 years of age! Taytem will need a bone marrow transplant in order for her body to stop deforming any more and to help her live a longer and healthier life. There is no cure for this disease. Her big brother Talyn is most likely to be her match for the transplant if he is not a carrier of the hurler gene! Taytem will start enzyme treatment next week in Minnesota at the University of Minnesota where she will also receive her transplant! We are trying to raise money to help with our monthly expenses while we are gone for three months during her transplant. Also I will have to go alone to Minnesota with Taytem during her transplant since my husband is not qualified for fmla, so he will stay behind and work and take care of our son. We have been so thankful for all the donations thus far and any of the donations left over that we do not use will be donated to the national mps society. Thank you and god bless.



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Donations 

  • Christine Petrosius
    • $100 
    • 7 yrs
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Organizer

Chamonix White
Organizer
Kearney, NE

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