Help for Freddy Jr!!

When Freddy was 1.5 yrs old he had an unexplainable siezure while eating with Mommy. We took him for an MRI an EEG and blood work. All 3 came back just fine. Since the first siezure Freddy has had at least 2 other siezures that we know of, each one worst than the last. After 2 yrs of no answers we finally got our sweet boy into Children's hospital for a 2 day overnight EEG. They monitored him all day and all night for 48 hrs. After the first night the doctor came in to talk to us and explain what they found. The EEG showed a lot of very abnormal electrical activity in both hemispheres of our baby's brain when he is sleeping/napping. The electrical activity should not be there and is causing him to bang his head when he is upset. It also is to blame for most of his bad behavior. His emotions & frustration come out as anger and he is unable to control it. He has ESES syndrome (a rare form of Epilepsy). This is causing him to be delayed in speech and learning also. The doctors at Children's hospital are working hard to find a medicine that will successfully control and hopefully clear up the electrical activity in his brain and put a stop to the angry outbursts. The first meds we tried had no effect at all and just made him very tired. He is now on 2 different meds. One to help with the activity in his brain and the other to help control his behavior. In a couple weeks we go back for another EEG to see if the meds are working. If they are not working we get to play trial and error with medications until we find one. We have to find the right meds before he has what the doctor called "The Big One", meaning a bad siezure that could really harm him. This whole situation is very hard on our little Freddy as well as Mommy, Daddy, Brother & Sister. In 3 days we spent over $300 plus Daddy did not get pd for the 2 days of missed work during our stay and mommy takes unpaid days to stay home with Freddy when he's sick because fevers cause him to have siezures. Gas, food & entertainment for Freddy cost us a small fortune. On top of our baby boy being sick we have to move because our house is being put up for sale by the landlord. luck has not been on our side latley.. Anything anybody could help us out with would be greatly appreciated. The money could be used for us to get Freddy what he needs,(medicine) Thank you for taking your time to read this!