"Fore Hadley" for CDH Awareness
Donation protected
Our sweet daughter, Hadley Kate Bush , passed away in our arms on Sunday, July 26th due to complications involving her underdeveloped lungs as a result of having been previously diagnosed with Congenital Diaphragmatic Hernia, or CDH . She lived six love-filled days. While her fight against CDH here on earth is over, her battle against it is just beginning as we plan to continue pushing on in her memory in order to best support future families affected by CDH and eventually find a cure for this extremely serious but relatively unknown birth defect. That starts with the inaugural “Fore Hadley Golf Classic” in the Spring of 2016, and it's why we are asking for a little bit of help from our friends and family today.
More info on Hadley's fight can be read at www.msbadlyhadley.com .
100% of the proceeds from this GoFundMe campaign and the "Fore Hadley Golf Classic" in Spring 2016 will benefit the CHERUBS organization.
CDH is a rare birth defect that affects roughly 1 in every 2,500 live births per year worldwide with an estimated 1,600 new cases in the United States annually. Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues. The cause of CDH is still completely unknown.
CHERUBS is an international organization for families and care-givers of children and adults who have been diagnosed with Congenital Diaphragmatic Hernia (CDH). Our goal for this golf event in Hadley’s memory is to raise as much funding as possible to further advance CHERUBS’ mission: “…to not only help parents of children born with CDH but to lead the medical community into finding the cause and prevention of this devastating birth defect.”
We cannot thank our friends and family enough for everything they have done to help get us through this tough time. Thanks in advance to all others who are able to help advance this cause, and we'll certainly post updates as often as we can!
Love,
Katie, Ryan, Huck Dog, and Ms. Badly Hadley Bush
More info on Hadley's fight can be read at www.msbadlyhadley.com .
100% of the proceeds from this GoFundMe campaign and the "Fore Hadley Golf Classic" in Spring 2016 will benefit the CHERUBS organization.
CDH is a rare birth defect that affects roughly 1 in every 2,500 live births per year worldwide with an estimated 1,600 new cases in the United States annually. Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues. The cause of CDH is still completely unknown.
CHERUBS is an international organization for families and care-givers of children and adults who have been diagnosed with Congenital Diaphragmatic Hernia (CDH). Our goal for this golf event in Hadley’s memory is to raise as much funding as possible to further advance CHERUBS’ mission: “…to not only help parents of children born with CDH but to lead the medical community into finding the cause and prevention of this devastating birth defect.”
We cannot thank our friends and family enough for everything they have done to help get us through this tough time. Thanks in advance to all others who are able to help advance this cause, and we'll certainly post updates as often as we can!
Love,
Katie, Ryan, Huck Dog, and Ms. Badly Hadley Bush
Organizer
Katie Bush
Organizer
Atlanta, GA
