For Baby Landon
Donation protected
WORDS FROM SABRINA (Baby Landon's Mother):
At 16 weeks pregnant we got what we thought was the worst news of our lives, that our sons heart didn’t form the way it should’ve. We were broken, lost with words, confused why we were chosen to go through this, why our son was chosen to go through this. We were asked close to 20 times if we wanted to terminate. Shocked and disgusted why this was even an option we of course continued on with the pregnancy, and decided to take it day by day, minute by minute. We were assured that as long as he was inside of me he was not affected by his condition which is known as CHD, Congenital Heart Disease. After many doctors visits, we chose for him to be treated at Boston Children’s, the worlds best children’s hospital. We thought the best we can do is give him the best shot at life- which is exactly what we did. I would deliver at Brigham and Women’s which is connected by a bridge so I could visit him while I was still admitted as a patient myself. On May 22 at 11:43pm, our adorable baby boy was born. I got to deliver him, like anyone else could’ve and that meant the most to me. To feel like this all wasn’t real for a moment that he was a healthy baby boy. They put him on my chest and we all cried in pure joy at how beautiful he is. But that feeling to me slowly went away, he was immediately put on an IV to keep something open in his heart that naturally closes at birth- because this was his only form of blood flow due to his condition. He was taken over to Boston Children’s NICU unit as I had to remain for a couple of hours to do what I needed on my end. He was okay though, in fact he was perfect. He acted like a normal baby, you could hold him like a normal baby, you could kiss on him and spend time with him as much as you wanted. For the first week of his life, this is how he lived. The fact we got to hold him in the first week meant the world to us, some parents there never got that. On May 29, he had to undergo open heart surgery to begin the process of fixing his heart. After a long, long day of surgery, he was finally out in the Cardiac ICU unit at Children’s. Seeing him for the first time after surgery was surreal and terrifying. He was so swollen from the fluids he didn’t even look like himself, he was connected to more wires then I could count. He was on life support and under a paralytic so his heart could heal without the added stress on his body. He was laying there, lifeless, but we knew by the monitors he was alive and okay. They kept our baby safe throughout it all. After 2 weeks in the ICU he finally was off any type of life support, some of his medications were turned off and he was slowly healing at his own pace. At this point we went over to the Cardiac Floor, where he would stay until he went home. I would say to him, Landon you did it, you strong boy. I could see the end of the tunnel and knew I’d be bringing him home soon. I read to him, held him, fed him and loved him with all my heart every single day. He was starting to realize who we were again. That momma and daddy loved him so much and that momma never left his side but that daddy needed to go back to work. An additional 2 weeks we were on that floor, working on his feedings was the key to him getting discharged. I tried so hard throughout the day and night to feed him every 3 hours, to get him to the goal they needed so we could take him home. Within those 2 weeks I was told, I did it. Landon did it. He was eating and gaining what they wanted for him to go home. We had to go through a home monitoring class, and take a baby CPR course prior to his discharge date. On June 26, we brought our baby home. Of course it wasn’t easy to bring him home, I had to constantly monitor him, I had to give him 6 different medications throughout the day and night. We had a visiting nurse and had to rotate visits between his cardiologist and his pediatrician. We didn’t mind all of this as long as we could have our baby home with us. Of course at this state he was considered immensely fragile. He would undergo another surgery in October which would make him that much healthier, at least that’s what we thought. On July 13, I was giving my son medication which caused him to throw up. Throwing up wasn’t new to him. I knew how to handle it and which steps to take. I turned him on his stomach on my arm and patted his back to make sure he got it all up, I suctioned the extra phlegm out of his mouth and throat so it was easier to breathe. His color came back and he was acting okay. I gave him a quick bath which he hated so he was crying, we thought if he’s crying he’s breathing, so we thought he must be okay. Unfortunately this time he was not okay. He had inhaled some of the vomit. He went limp in my arms, I immediately put him on the floor and started giving him CPR as my mother called 911, in a panic. I had to keep as calm as possible for my baby as I was the only one in the moment who could help him. 911 stayed on the line with me as I administered CPR. Within minutes the police arrived and began to take over, within minutes of that the paramedics arrived. They provided oxygen and continued to do CPR. We got the baby situated and took off to Holy Family in Haverhill because it was the closest hospital to us. He was stable, but his heart rate was incredibly low. We were waiting on med flight which was 25 minutes out, with him being stable we thought we should all drive into Boston to meet him. By the time we got into Boston we got a call to turn around, that he took a turn for the worse and wasn’t stable enough to get life-flighted. We were all speeding, praying to god that our baby would pull through. I felt it in my heart that something wasn’t right. So I called for an update as we were still 20-30 minutes away. At this very moment, we got an update we weren’t ready to hear. At 7:24pm our 7 week old baby boy, Landon, had died. This was now the worst news we ever got.
........ I am seeking funds to help with Baby Landon's medical, and funeral expenses. Due to Sabrina being unable to work for Landon's medical needs, money is very limited. Any donation would be appreciated and a blessing.
Thank you so much,
Amanda (Sabrina's cousin)
At 16 weeks pregnant we got what we thought was the worst news of our lives, that our sons heart didn’t form the way it should’ve. We were broken, lost with words, confused why we were chosen to go through this, why our son was chosen to go through this. We were asked close to 20 times if we wanted to terminate. Shocked and disgusted why this was even an option we of course continued on with the pregnancy, and decided to take it day by day, minute by minute. We were assured that as long as he was inside of me he was not affected by his condition which is known as CHD, Congenital Heart Disease. After many doctors visits, we chose for him to be treated at Boston Children’s, the worlds best children’s hospital. We thought the best we can do is give him the best shot at life- which is exactly what we did. I would deliver at Brigham and Women’s which is connected by a bridge so I could visit him while I was still admitted as a patient myself. On May 22 at 11:43pm, our adorable baby boy was born. I got to deliver him, like anyone else could’ve and that meant the most to me. To feel like this all wasn’t real for a moment that he was a healthy baby boy. They put him on my chest and we all cried in pure joy at how beautiful he is. But that feeling to me slowly went away, he was immediately put on an IV to keep something open in his heart that naturally closes at birth- because this was his only form of blood flow due to his condition. He was taken over to Boston Children’s NICU unit as I had to remain for a couple of hours to do what I needed on my end. He was okay though, in fact he was perfect. He acted like a normal baby, you could hold him like a normal baby, you could kiss on him and spend time with him as much as you wanted. For the first week of his life, this is how he lived. The fact we got to hold him in the first week meant the world to us, some parents there never got that. On May 29, he had to undergo open heart surgery to begin the process of fixing his heart. After a long, long day of surgery, he was finally out in the Cardiac ICU unit at Children’s. Seeing him for the first time after surgery was surreal and terrifying. He was so swollen from the fluids he didn’t even look like himself, he was connected to more wires then I could count. He was on life support and under a paralytic so his heart could heal without the added stress on his body. He was laying there, lifeless, but we knew by the monitors he was alive and okay. They kept our baby safe throughout it all. After 2 weeks in the ICU he finally was off any type of life support, some of his medications were turned off and he was slowly healing at his own pace. At this point we went over to the Cardiac Floor, where he would stay until he went home. I would say to him, Landon you did it, you strong boy. I could see the end of the tunnel and knew I’d be bringing him home soon. I read to him, held him, fed him and loved him with all my heart every single day. He was starting to realize who we were again. That momma and daddy loved him so much and that momma never left his side but that daddy needed to go back to work. An additional 2 weeks we were on that floor, working on his feedings was the key to him getting discharged. I tried so hard throughout the day and night to feed him every 3 hours, to get him to the goal they needed so we could take him home. Within those 2 weeks I was told, I did it. Landon did it. He was eating and gaining what they wanted for him to go home. We had to go through a home monitoring class, and take a baby CPR course prior to his discharge date. On June 26, we brought our baby home. Of course it wasn’t easy to bring him home, I had to constantly monitor him, I had to give him 6 different medications throughout the day and night. We had a visiting nurse and had to rotate visits between his cardiologist and his pediatrician. We didn’t mind all of this as long as we could have our baby home with us. Of course at this state he was considered immensely fragile. He would undergo another surgery in October which would make him that much healthier, at least that’s what we thought. On July 13, I was giving my son medication which caused him to throw up. Throwing up wasn’t new to him. I knew how to handle it and which steps to take. I turned him on his stomach on my arm and patted his back to make sure he got it all up, I suctioned the extra phlegm out of his mouth and throat so it was easier to breathe. His color came back and he was acting okay. I gave him a quick bath which he hated so he was crying, we thought if he’s crying he’s breathing, so we thought he must be okay. Unfortunately this time he was not okay. He had inhaled some of the vomit. He went limp in my arms, I immediately put him on the floor and started giving him CPR as my mother called 911, in a panic. I had to keep as calm as possible for my baby as I was the only one in the moment who could help him. 911 stayed on the line with me as I administered CPR. Within minutes the police arrived and began to take over, within minutes of that the paramedics arrived. They provided oxygen and continued to do CPR. We got the baby situated and took off to Holy Family in Haverhill because it was the closest hospital to us. He was stable, but his heart rate was incredibly low. We were waiting on med flight which was 25 minutes out, with him being stable we thought we should all drive into Boston to meet him. By the time we got into Boston we got a call to turn around, that he took a turn for the worse and wasn’t stable enough to get life-flighted. We were all speeding, praying to god that our baby would pull through. I felt it in my heart that something wasn’t right. So I called for an update as we were still 20-30 minutes away. At this very moment, we got an update we weren’t ready to hear. At 7:24pm our 7 week old baby boy, Landon, had died. This was now the worst news we ever got.
........ I am seeking funds to help with Baby Landon's medical, and funeral expenses. Due to Sabrina being unable to work for Landon's medical needs, money is very limited. Any donation would be appreciated and a blessing.
Thank you so much,
Amanda (Sabrina's cousin)
Organizer and beneficiary
Amanda Swanson
Organizer
Rapid City, SD
Sabrina Hadley
Beneficiary
