2018 Critical Care Status Fight

2018 UPDATE I see a primary care doctor,
Referred to
1- OB GYN
2- Rheumatologist
3- orthopedic doctor /orthopedic surgeon
4- neurologist and neurosurgeon ,
5- oncologist,
6- physical therapist...water therapy
7- Pulmonologist
8- psychology
9- neuropsychologist
10 day Hospitalization begins Monday morning at 8 am Lupus and autoimmune diseases is putting my life and organs in danger ...

Irreversible muscle tissue and bone damage
Cannot repair
Only try to stop
Referral to long term life long PAIN MANAGEMENT
Referral to manipulation therapy

I have a severe vitamin D Deficiency, my body is not absorbing vitamin D Even the prescribed vitamin D THAT is already processed What happens to a body without vitamin D ? GOOGLE IT Autoimmune disease is preventing body from absorbing vitamin D


************************ Auto immune disease LUPUS - MINIMUM SUN EXPOSURE necessary SCLEROSIS Cushings Disease "buffalo hump disease" Cause of weight ,swelling, loss of hair and nails etc.. so many please Google them

********* LUNGS Pulmonary function test - Stiff lungs Diagnosis Restrictive lung disease- Referred to pulmonologist for further evaluation and treatment

******* NECK Cervical degeneration on both sides with acceleration (in 2 year comparison ) Advanced rheumatoid arthritis degenerative bone disease Osteoarthritis C4 through C7 Disc dessication(degeneration) spondylosis and stenosis Compression Foreaminal narrowing due to uncovertable spurring Concentric disc bulge with posterior disc osteophyte complex Spinal canal narrowing Anterior CSF SPACE effacement Right and left foraminal narrowing die to uncovertable hypertrophy Most pronounced C5- C6 BUT IS C3- C7

****** HANDS Osteopenia with degenerative changes throughout the left and right hand and visualized wrist. Finger flexion and overlap obscures portions of the phalanges. There is subchondral lucency at the fifth proximal phalanx base, with the appearance of degenerative subchondral cysts.

***** KNEES Medial meniscus: Focally severe degeneration and tear located at the root ligament posteriorly. Moderate peripheral migration of the body the meniscus with associated osteophytes. Medial collateral ligament: Peripheral fibers intact with the prior injury of the proximal tibial insertion zone only.. Medial femoral condyle cartilage: SEVERE GRADE 3 CARTILAGE EROSION femoral condyle just and posterior to weight-bearing apex. SCLEROSIS readily visible in this area. Medial tibial plateau cartilage: SEVERE GRSDE5 3 cartilage erosion area central weight bearing Bladder : prior strain Alignment: SEVERE lateral tilt and mild subluxation in the extended position. Patellar cartilage: A multifocal localized severe grade 3 cartilage erosion involving fulcrum and medial facet superiorly Trochlear cartilage: Focally severe grade 3 cartilage erosion anteroinferior medial trochlear surface over a 7-8millimeter zone. Plica: in tear plica thickening and patchy fibrosis in Hoffa's fat... TTTG distance: 1.5 cm. MOUTH

************* Specimen: Right gingiva/alveolus Specimen Size and Pathologic Findings: The specimen consists of a 1.5 x 1.0 x 0.5 cm unoriented, irregularly shaped bony tissue fragment (resection margin inked blue). Cut sections show a tan-white, rubbery and homogenous

**************************** PELVIC AREA/ MASS LEFT SIDE Malignant 5.9 x 6.5 x 9.3 cm 1.9 x 2.8 x 3.7 cm.

******************************** Left and right groin and inguinal hernia

************************** Spinal Epidural lipomatosis Could be caused by lupus Or steroid use when younger Mass in the epidural sheath of my lowest back Paraperesis( temporary paralyzation of limbs and fingers and motor skill coordination loss) MRI reveals 11 mm epidural mass in dorsal spine D3- D7 WITH spinal cord compression ***************************** Lymphoma is not just one disease. The term refers to a group of blood cancers that develop in the lymphatic system. There are two main types: what I HAVE.. formnon-Hodgkin lymphoma (NHL) AGGRESSIVE diffuse large B-cell lymphoma Stage IV means i have Cancer in my lymph nodes both above and below the diaphragm, and cancer cells elsewhere .

I HAVE MORE than ONE lymph node areas in the body that have cancer cells. . I have numerous cancerous lymph node areas including my spleen

The location of the cancerous lymph nodes are on both sides of my diaphragm, the thin muscle under the lungs and heart that separates the chest from the abdomen the disease is spreading to my lungs

This would be the first major organ I am having chest pain, shortness of breath, and coughing / difficulty swallowing or eating large meals because my lymphomas press ony trachea, or superior vena cava (the large vein that transports blood from the arms and head to the heart) and I'm having significant fluid around each and every lymphatic area, which is VERY uncomfortable some days Baseline survival Researching options and risks Doing MY research ... and trying to make peace with what's happening Every time I have a surgery My body responds with an inflammatory response My body cannot tell the difference between surgery to repair and improve something and TRAUMA

THE " healing process" seems to set off a response internally that causes my body to not only attack bad or infectious parts But it destroys the good cellular tissue bone and mass ****** And regeneration ( like in the case of my scar tissue and internal adhesions of my organs to my stomach intestines and lungs ) becomes problematic when the white blood cells duplicate at a massive rate for an extended period of time I have allot to think about and even more to face Lastly For the first time ...I am suffering from an inability to move forward in my treatment or my life. It has consumed my life and affected my ability to have any normal function most days
>>>>>>>>>>>>>>* certain recent traumatic events that I have not disclosed to anyone except close friends. My multiple diagnosis was eye opening

These are facts I've left out as much emotion as possible to help you understand the overwhelmingly confusing and massive health issues I'm experiencing Thank you if you've taken the time to actually read all this And especially if you stay Please leave an encouraging message or any comment just to let me know you're here I've never wanted more to be happy And to experience and see things I've always wanted to You can hopefully stay and be a part of my journey I've got some fighting and living to do I'm just glad I haven't lost my ability to communicate through words Thank you My cell [phone redacted]

I've left my original post 
From May 2016


 ( Lymphoma) patient that hopes you can help with this one time need. Please consider... I AM SCHEDULED FOR SURGERY EXTENSIVE HYSTERECTOMY MAY 24TH AT 7:30 AM  2 years ago I was a healthy, happy and employed 20 year veteran legal professional , working as a Senior Paralegal and Bailbondsman for Judges Phillip and Pat Robertson here in Dallas ....   I had a FULL and succesful life, my entire future was ahead of me .  Including my 2 daughters and son , ( now ages 22, 16 and 10)..

THEN ONE DAY..I became paralyzed from the waist down on my left side and this day began what would be the beginning of an unbelievable , tragic and scary turn of events beginning with my health and several diagnosis

I have lived a very different, quiet, isolated and humble life, focused on my health and medical care, and I had given away or sold my worldly possesions to lower my cost of living  and moving.

  From my house, my car, most of my possesions and my children had to live elsewhere when I stopped being able to drive and became so sick.

WHAT CAUSED THIS SUDDEN CHANGE IN MY LIFE?  (SEE MEDICAL DOCUMENTATION IN PICTURES) I have a very rare spinal cord condition known as spinal epidural lipomatosis , its a mass in the epidural sheath of my back, it is permanent  and causes neural, neurological symptoms like paralyzation, speech  weakness, neuropathy and complete immobility .

I was deemed Disabled for Life and sometimes need assistance walking and bathing. I use a wheelchair and walker/cane some days I was also diagnosed with Ovarian and Uterine Cancer, Endometriosis, my Uterus and Ovaries are fused to my internal organs.

I had a very distended abdomen and several masses in my uterine wall , I suffer with hemmorraghing and AMENORRHEA I was diagnosed with DEGENERATIVE bone Disease, Osteoarthritis, Advanced Rhematoid Arthritis and I tested Positive for Auto Immune Disease. ..

But Ultimately I would be diagnosed With formnon-Hodgkin lymphoma (NHL) AGGRESSIVE diffuse large B-cell lymphoma.

I moved from Dallas to Fort Worth to receive better medical care and to be close to my sister and my youngest son that she agreed to care for full time during my treatment..

I would leave behind my Mother and Father with Alzheimers and my  daughters AND 5 month old grandbaby♡ in Mesquite Texas.     

I was so lucky to have my 2 best friends move to Fort Worth FOR and WITH ME. I had no income and they took the burden of caring for me.

They would drive and hour and a half  everyday just to get to and from their jobs.
Ive never needed any help , thanks to especially them and others that have been so supportive these last 2 years..  

  I was receiving Medical Care in Fort Worth, seeing 7 specialists primary care doctor,  OB GYN, oncologist, rheumatologist, orhtopedic doctor, orthopedic surgeon, neurologist, physical and water therapist     after a year of treatment ...

.I decided to move back to Dallas FOR the birth of my grandson in October 2015 SINCE then,,,

I've been experiencing a MASSIVE 30-50 lb fluid retention, bleeding and hemorrhaging and tissue passing issue. ... After years of waiting I have been approved for an extensive hysterectomy.. IT is a high risk 5-6 hour surgery , with a 3 month recovery But IM IN A CRISIS, and at an amazing point in this story.

  I NEED THE 2500 COPAY AND other medical and  living expenses FOR ME AND MY CHILDREN covered through July 31st All the doctors in the Medicaid the system kept refusing to approve me for the surgery, so I went outside of the Medicaid system ... I was also given notice by my insurance that they were no longer able to cover all expenses and that I would need to purchase a supplemental insurance and that the physical , watertherapy and some procedures would no longer be covered in Dallas  we have not really struggled to make ends meet , AND NEVER HAD TO ASK FOR HELP BEFORE TODAY it JUST IS TOO unfortunate MANY THINGS  happened at once that need to be done.. I have not been approved for DISABILITY yet but am FIGHTING FOR THAT WITH THE HELP OF AN ATTORNEY WE JUST NEED HELP , A ONE TIME HELP We have asked everyone we know to help , please share our story, for more details and pictures please feel free to contact me privately OR IF YOU CAN DO ANYTHING DIRECTLY  feel free to contact me  [phone redacted] my addess:  or my facebook Http://www.facebook.com/marisaofdallas