Fighting for NMO
Donation protected
♿️Good Day Good people, I am Trina Raymundo raising this campaign to help a friend from the Philippines who suffers from a rare incurable autoimmune disease.
Here is her Message / Story:
I'm Shiela Marie Rutaquio 27 yrs old from Binangonan, Philippines who have this rare autoimmune disease called NMO (Neuromyelitis Optica Syndrome). Ive been diagnosed last August 2018, which commonly known as Devic's Disease. It is about my own immune system fights against itself that causes my spinal cord myelin sheath to be damage resulting to paralysis from my stomach down to lower extremeties, severe lower back pain, bowel and bladder dysfunction.
I was paralyzed since July 2018 and been ON and OFF to the hospital since then. Because doctors here cannot figure out the real diagnosis as early as they can. That is why I was left being disabled, paralyzed from stomach down to feet..
My symptomps starts December 2017 wigh just a simple lower back pain, I tried many painkillers that I have and even linament oils but still nothing changed. Doctor told me that I had to undergo an ultrasound in the kidney and bladder and the result came they found 0.4mm stone at the right side of my kidney. And been taking meds to disolve it.
By February 2018 I experienced pins and needles to my feet until by March 2018 my left legs becomes weaker and doctors told me that it is just because my high sugar level, Out of nowhere I became constipated. And by April 19 2018 I was admitted due to urinary retention, doctors told me that it was just my stone passed through. By the month of May 2018 I am struggling hard coz of my back pain and I can't barely walk both legs are weakened, and that was only the time that doctors refer me to a Neurologist who ordered an Cervical and Thoracic and Lumbar Spine with Contrast MRI. By June-July 2018 I can felt the numbness into my arms to left chest, eye sight start to become blurred.
It is really a real life horror for me and up to now Its hard for me to accept that I am paralyzed cant walk doctors told me they cannot make me coz maybe they lack of knowledge about my condition and facilities, I cannot pay for Doctors that why we are just sticking here in the Philippine General Hospital which do check up for free.. But since they gave me a lot of prescription that I must take to prevent having relapse. My family cannot afford it everytime I need it.
Here I am asking help swallong my pride asking to all kind hearted person who can get to see this campaign for my Medical Assistance/ Contineous Therapy Session because I am residing here in the Philippines where in there is no health insurance available for jobless person like me and as you know this kind of illness is rare and still no cure meaning it is a lifetime medication which my family and relatives can't contineously afford.
As of this moment I am now on intermittent catheter with paralyzed lower limbs and my Nuerologist told me that in able for me to walk again and regain my sitting balance I need to take Therapy session, which I already started and in able to continue it I must always pay for every session and that is what we can't afford. Aside from 11 different kinds of medications I take daily which are
Azathioprine 50mg 2x/Day
Prednisone 10mg 1x/Day
Omemprazole 40mg 1x/Day
Amitriptyline 25mg 1x/Day
Gabapentin 1200mg 1x/Day
Clonazepam 0.5mg 2x/Day
Pregabalin 75mg as needed
Amlodipine 5mg 1x/Day
Bisacodyl 5mg 2Tab/Night
Bisacodyl Suppository if 3 Days with no poop.
Calcium,
B Complex,
Vit D,
Also I am in need of medical supplies like
Intermittent Catheter Kit size 12 or Sterile Straight Catheter Size 12
Adult Diaper Caress XL,
Nursy Wipes,
Underpads XL,
Cotton,
Povidine Iodine,
Alcohol,
Surgitech Lubricating Jelly
So here I am swallong my pride due to desperation, asking for good people who might and willing to support me to continue the fight to this illness and inable to continue my life atleast. It will be such a huge help for me with my health and praying and hoping that someday my body can recover. And in gratefull return I will include you all to my prayers.
✅✅ You may also visit my Facebook Account just search "Shiela Marie Rutaquio" and my album entitled My NMO - Journey to see updates on my health and recovery. And can also view my story posted by The Sumaira Foundation.
https://www.sumairafoundation.org/sheilas-nmo-story-battling-nmo/
THANK YOU AND GODBLESS
Here is her Message / Story:
I'm Shiela Marie Rutaquio 27 yrs old from Binangonan, Philippines who have this rare autoimmune disease called NMO (Neuromyelitis Optica Syndrome). Ive been diagnosed last August 2018, which commonly known as Devic's Disease. It is about my own immune system fights against itself that causes my spinal cord myelin sheath to be damage resulting to paralysis from my stomach down to lower extremeties, severe lower back pain, bowel and bladder dysfunction.
I was paralyzed since July 2018 and been ON and OFF to the hospital since then. Because doctors here cannot figure out the real diagnosis as early as they can. That is why I was left being disabled, paralyzed from stomach down to feet..
My symptomps starts December 2017 wigh just a simple lower back pain, I tried many painkillers that I have and even linament oils but still nothing changed. Doctor told me that I had to undergo an ultrasound in the kidney and bladder and the result came they found 0.4mm stone at the right side of my kidney. And been taking meds to disolve it.
By February 2018 I experienced pins and needles to my feet until by March 2018 my left legs becomes weaker and doctors told me that it is just because my high sugar level, Out of nowhere I became constipated. And by April 19 2018 I was admitted due to urinary retention, doctors told me that it was just my stone passed through. By the month of May 2018 I am struggling hard coz of my back pain and I can't barely walk both legs are weakened, and that was only the time that doctors refer me to a Neurologist who ordered an Cervical and Thoracic and Lumbar Spine with Contrast MRI. By June-July 2018 I can felt the numbness into my arms to left chest, eye sight start to become blurred.
It is really a real life horror for me and up to now Its hard for me to accept that I am paralyzed cant walk doctors told me they cannot make me coz maybe they lack of knowledge about my condition and facilities, I cannot pay for Doctors that why we are just sticking here in the Philippine General Hospital which do check up for free.. But since they gave me a lot of prescription that I must take to prevent having relapse. My family cannot afford it everytime I need it.
Here I am asking help swallong my pride asking to all kind hearted person who can get to see this campaign for my Medical Assistance/ Contineous Therapy Session because I am residing here in the Philippines where in there is no health insurance available for jobless person like me and as you know this kind of illness is rare and still no cure meaning it is a lifetime medication which my family and relatives can't contineously afford.
As of this moment I am now on intermittent catheter with paralyzed lower limbs and my Nuerologist told me that in able for me to walk again and regain my sitting balance I need to take Therapy session, which I already started and in able to continue it I must always pay for every session and that is what we can't afford. Aside from 11 different kinds of medications I take daily which are
Azathioprine 50mg 2x/Day
Prednisone 10mg 1x/Day
Omemprazole 40mg 1x/Day
Amitriptyline 25mg 1x/Day
Gabapentin 1200mg 1x/Day
Clonazepam 0.5mg 2x/Day
Pregabalin 75mg as needed
Amlodipine 5mg 1x/Day
Bisacodyl 5mg 2Tab/Night
Bisacodyl Suppository if 3 Days with no poop.
Calcium,
B Complex,
Vit D,
Also I am in need of medical supplies like
Intermittent Catheter Kit size 12 or Sterile Straight Catheter Size 12
Adult Diaper Caress XL,
Nursy Wipes,
Underpads XL,
Cotton,
Povidine Iodine,
Alcohol,
Surgitech Lubricating Jelly
So here I am swallong my pride due to desperation, asking for good people who might and willing to support me to continue the fight to this illness and inable to continue my life atleast. It will be such a huge help for me with my health and praying and hoping that someday my body can recover. And in gratefull return I will include you all to my prayers.
✅✅ You may also visit my Facebook Account just search "Shiela Marie Rutaquio" and my album entitled My NMO - Journey to see updates on my health and recovery. And can also view my story posted by The Sumaira Foundation.
https://www.sumairafoundation.org/sheilas-nmo-story-battling-nmo/
THANK YOU AND GODBLESS
Organizer
Trina Raymundo
Organizer
North York, ON
