Fund the Fight for Toby

$4,280 of $15,000 goal

Raised by 57 people in 54 months
On January 14, 2014 my sister Elizabeth, pregnant with their third child, and her husband Josh, went to a regularly scheduled 20 week anatomy ultrasound and got some devastating news. Their son, Toby was measuring an average of 3 weeks smaller than he should be, and the placenta which nourishes a developing baby in the womb, was around half the size it should be.

Initially they were told Toby would likely not survive, but wisely decided to get a second opinion. Part of that was made difficult by the fact that they had to fly halfway around the world to get it. Elizabeth is a member of the Wyoming Air National Guard who has in addition to her service, worked for N.A.T.O. out of Papa, Hungary since 2012.

Elizabeth immediately found a great perinatologist, as close to home as possible, in Denver, Colorado and flew home alone, with her husband and children only a few days behind. The perinatologist discovered that her placenta has large portions that have died off and more sections are continuing to die, causing Baby Toby's growth to be extremely restricted and meaning he will need to be delivered very early in order to survive. They've ruled out genetic issues, but still don't know what exactly caused this to happen. The only thing they can do is wait and watch and get Toby the best medical care possible. The doctors are monitoring Elizabeth and Toby very closely, and will wait as long as possible to deliver him to give him the best chance possible, but Toby will still be born somewhere between 25 and 32 weeks of gestation.

Toby will be what is called a micro-preemie, and as such will be in the Neonatal Intensive Care Unit (NICU) for a very long time. Even a few days in a NICU can cost hundreds of thousands of dollars in medical costs, but Toby will probably be there for months, not days. Elizabeth and Josh do have insurance but 10% of every bill will fall to them to pay, with no limit for a catastrophic incident like this. Their portion of the bills could well be over $100,000.00.

On top of all of this, when my sister and her family were forced to return to the U.S. so abruptly they were forced to leave behind two of their beloved family members, Kyah and Zeke. Kyah is an 11 year old Siberian Husky and Zeke is a 9 month old Great Dane.
They always knew Zeke would need special care to be moved back to the U.S. when it was time, but they were not planning on the extensive medical costs they are about to incur.

For the time being they have someone watching over Kyah and Zeke but this is not a permanent solution and they need to come home. Unfortunately because of Zeke's size, they have to come as cargo and it is looking more and more like it is going to cost around $5000.00 just to get them home. Before this, my sister and her family would have been able to make this work but with the upcoming medical bills they don't know how to make this happen, and they are worried about the safety of their furry family members. Anyone who knows Elizabeth will tell you she is extremely dedicated to her animals; I don't know anyone who loves her pets as fiercely as she does. I'd like to help bring them home, and I'm hoping you can help.


Elizabeth, Josh, Baby Toby and his big brother Oliver and sister Sarah are in for the fight of their lives, and Toby for his life. I'd like to make it a little easier and a little less stressful by helping raise as much money as we can to help get them through this time. The medical bills, bringing home Kyah and Zeke, transportation and living costs for possibly 5 or more months is an almost unimaginable amount of money, but I am hoping the generosity of friends, family and even just a few caring strangers will help to make things a little better for them.


Any amount you can give is appreciated from the bottom of our hearts, and we hope you are rooting for baby Toby as much as we are. He has a long way to go, but we believe he will fight as hard as his family is for him.
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Hello again friends! Important news! A few days ago Elizabeth (and Toby) were placed on hospital hospital bed rest with close monitoring, as the doctor felt it was warranted at that time. That decision turned out to be a good one. Late last night Toby failed his NST (non-stress test) and received only 2 out of 10 possible points on a biophysical profile. He had a heart beat but was not moving and they determined him to be in distress and that it was time to deliver him. Born by c-section right before midnight (April 5th, 2014, 11:36 pm) , Tobias Bond Tolin weighs in at 2 lbs 13 oz.. He is 14 and 3/4 inches long. That's the average length of a 28 weeks gestation baby and the average weight of about a 30 week gestation baby. Toby was born at 32 weeks and 2 days gestation, but due to his growth restriction, he is much smaller than he should be even for this age.

Toby is in the NICU, as we knew he would be, getting the best care they can give him. Until a while ago he was on CPAP (continuous positive airway pressure) and 31% oxygen as well as an IV through his cord stump and a feeding tube. I've just been told that they removed the CPAP but needed to increase the volume of oxygen slightly to compensate for that. He has had a chest x-ray that did come back clear, so that is a very good thing. I'll share more information as it becomes available and appropriate. Mom is sore but doing well, and will be able to go see Toby for the first time since the birth, in the NICU, later today and Dad has been back and forth between Toby and Elizabeth and she has been able to see pictures and even useFaceTime (video calling) to be able to see him while she has to wait due to the c-section.

They've said Toby looks good so far, but we know that with preemies, things can change by the day and even by the hour. They say to never trust a preemie, because they are extremely prone to sudden issues. Today is Day 1 for Toby, and there are a lot of days to come before Toby will be able to go home. I'll be updating here, or you can also check out Facebook.com/teamtobytolin to get updates as they happen. All your thoughts and well wishes and glitter and prayers send Elizabeth and Josh a lot of comfort. It helps to know they have so many people surrounding them who care.

We've had so many generous donations already, we are blown away by the generosity and kindness of our friends, family and even some wonderful people we don't know. The stress of wondering how to pay for Toby's medical bills is a little but lessened by each of you, and we thank you. I know I'd like to let Elizabeth and Josh be able to focus on just Toby in the coming days, so I thank each and every one of you for donating even a few dollars, because every bit truly does help.

Thank you all, you are amazing.

P.S. And for those wondering, Zeke and Kyah did eventually make it home and are doing well.
Toby Day 1
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We've officially made it to 20% of our goal! Thanks again to all of those who were able to donate and also to those who shared our page and story. Our family is indebted to you.

Thursday has come and gone and that means Elizabeth and Josh had their NICU tour at the hospital that will be caring for Toby and an appointment with the perinatologist.

The bad news is that Toby is still measuring an average of three weeks behind and the blood flow to him from the placenta is still severely restricted.

The good news is that Toby is still only measuring three weeks behind. In two weeks he had two weeks worth of growth. This is a very good thing, and helped keep things in favor of not hospitalizing Elizabeth and delivering Toby now. He has earned two more weeks to grow before the doctor reassesses what to do.
This is even more important because of what Elizabeth and Josh learned during their NICU tour. While Toby is technically viable now, much of the equipment the NICU uses is still too big for his tiny, tiny body. On Thursday Toby weighed in at exactly 500 grams, slightly over one pound. In order for the NICU team to be able to care for Toby better, he needs to gain at least 100 more grams of weight before he is born. So those two weeks they have been granted is extremely important for Baby Toby!

Below, I'm linking an excellent info graphic on preemies and their hospital stays that really outline the financial hardships families go through to help their babies get to where they can survive outside of a hospital. This is what we are trying to help Elizabeth and Josh with, and every dollar we raise is just a little bit closer to helping them get through Toby's difficult first months. It's going to be a fight, and you all are giving invaluable help to this family through your support, both emotional and financial.

As always, Thank you, thank you, thank you. There's nothing we can do to show you our gratitude, but just know it's there and we are so very aware what each and every one of you has done for us. Whether you gave up the price of a coffee, a dinner out, a nice pair of shoes or even more, we are extremely grateful to you. Every little bit helps.

http://www.tampabay.com/specials/2012/reports/juniper/preemies.shtml
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Wow! We raised over 10% of our goal in just the first day! Talk about amazing. We are blessed with the generosity of our friends, family and even some kind folks we have never met!
Elizabeth's next appointment is on Thursday and we are all hoping for the news that Toby can stay put a few weeks longer. Every day they can wait to deliver him is a day for him to develop more, get stronger and gain weight. If he can go to 28 weeks, the chances he will have a brain bleed will be greatly reduced.
When the decision is made to deliver Toby, Elizabeth will be hospitalized and if there is time, be given two shots of steroids 48 hours apart to help quickly mature Toby's lungs. If there isn't time, Toby will be delivered as quickly as possible. In either case he will then be rushed to the NICU where he will be assessed and given every assistance they can. That's when the fight really starts.
If you'd like to get every update on Toby as it becomes available, please go to https://www.facebook.com/teamtobytolin and like his page.

I just want to take this moment on behalf of myself, my sister and brother-in-law and our whole family, to say thank you again for each and every donation we have received, and that continue to roll in. Even a few dollars is helpful and it all adds up to a wonderful gift you've joined together to give.
A recent ultrasound of Baby Toby
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We've raised nearly a thousand dollars just since last night! That is amazing! Our thanks go out to everyone who has been able to give and even those just sharing this page!
Zeke and Kyah say thank you too! Here's a picture of each of them if you've never seen these members of the Tolin clan. Everyone misses them and hopes they can come home soon, just one less thing on Elizabeth and Josh's plate.
Zeke, the sweet Great Dane puppy
Kyah
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$4,280 of $15,000 goal

Raised by 57 people in 54 months
Created February 7, 2014
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$5
Anonymous
51 months ago
$20
Anonymous
52 months ago
KS
$100
Karen & Louis Sanders
52 months ago

Prayers and best wishes for the newest member of our family

JD
$50
Jean Davis
53 months ago

I have been following your progress through my granddaughter, Briahn Bradshaw. My prayers for all.

$500
Anonymous
53 months ago
$15
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53 months ago
$20
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54 months ago
$50
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54 months ago
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