Basic short-term needs
Below is the original entry.
Since then, Ronnie had a bad fall. No bones broken just the biggest hematoma the ER or I have ever seen. He's sore and turning purple and yellow around most of his middle, and is unable to fully function. The ER was unable to (as usual) offer any pharmaceutical aid: he cannot use more than Tylenol for pain.
My own illness spiraled into yet another round of paraspinal muscle spasms. All this, on Tuesday.
We are exhausted. Keeping a supply of natural remedies and supplements is nearing impossible, without cash. Insurance will not pay for what we can use, so that's that.
I took "Starting over" off the title of this because, simply, I begin to doubt any viable future for any people with chronic illness in the U.S. All that's left is bare-bones survival, if that.
A little over a year ago, we lost our home to foreclosure. It would have been paid off in four years, and we had worked a lifetime to get to where we were. It was, and is, a major blow to our survival as we deal with chronic illness and aging in a poor economy and location. Surgeries and lack of real health care are burdens that continue to plague us.
We've been unable to restart our lives in this area. Upon examination, we've discovered a subculture of people with stories very similar, people who live and work out of campers, across the country. We hope to join the ranks of those who refuse to stop living because of economic opposition, and we hope to do so by this spring.
For now, the funds will be for survival alone. We're experiencing a complete lack of income due to surgery and continued disability.
This is not a new situation for us. We struggle, daily, for a path out of the downward spiral. At last, we've come to a possibility: living as nomads, working where there's work, doing what we're able to do.
Any help is appreciated, and in any form. Cash is good, but we'd prefer to give value for value. Talk to me.
I promptly came down with another bout of paraspinal muscle spasms (chronic).
We spent most of last night wide awake, both of us. Again.
For people who can't use much of what Big Pharma offers, there is little health _care_ to be had. Neither of us can use NSAIDs or narcotics. Ronnie can use Tylenol. We use natural and home remedies, mostly. Which insurance and the disability aid system says doesn't count.
"Patient refused medication."
Sure we do. You would too, if you were made sicker than before by the "cure." Projectile vomiting, sleep apnea complications, whole body edema/heart valve or kidney damages and reactions, and more. Tylenol? Pulmonary suppression, for me... trouble breathing, pneumonia or bronchitis. It's not fun. I have many problems with foods, as well.
They call it "fibromyalgia syndrome"... which has many causes. Most of the lab tests are unreliable.
We just want to live and feel better. Eventually, to relocate out of this region and start over.
What else can we do?
I'm still gimping and using a walking stick after a bad fall and broken ribs a year ago this April... right after we lost the home we had worked so hard to get and keep. My left wrist isn't repairable by surgery; it was injured in a fall almost three years ago. I've been instructed to do home PT and use a brace and/or wrap it (if I don't, within a week I lose use of the entire arm, it hurts badly, and sleep is almost impossible).
Our illnesses are complicated by an inability to use common pharma medications, ergo we have "no medical record" (aside from undeniable symptoms, ignored) of health problems. This is disability system standard, and why we don't have disability income.
Muddling on. Murphy's Law is upon us.