Yavor Milanov - HSCT intervention for stopping MS
Donation protected
Hello there, my name is Yavor Milanov, age 33. I was diagnosed, 8 year ago , with Multiple Sclerosis(MS). For those who are not fully aware, that is an auto-immune, degenerative condition, which progresses over the years and in most cases results in high level of disability such as wheel-chair dependency, etc. There are a lot other major symptoms, which I will mostly not underline in my story and would rather sum up all bad news as a dramatic event/story of a young person, previously full of desire to live, to progress and improve the world around him, unfortunately destined to combat such unpleasant circumstances. I am not for a pity, as there are whole a lot of people with the same or similar conditions and in way worse stage....
Instead, I would rather use my personal example as an inspiration for all the people in grave needs that there are options, other alleys and an individual should not disregard their hopes - period. In other words, during the deepest crisis of our lives(no matter due an illness or for other reason) people tend to feel lonely, depressed and left behind. Not true! Or it doesn't have to be! I-myself, believe in the good side of the people! In many cases, just a minute of attention or a nice word can bring the inner strength up and inspire a human being in need. That happened to me many times during the rollercoaster of MS. Therefore, my appeal here is for joining and supporting my strong faith not to give in this horrible condition and to eventually come out as successful and fully capable, as dr. Wahls calls us, MS warriors :)
A typical story for a MS diagnosed man/woman is as it follows...Originally a stage of denial kicks in where you tend to believe you are healthy and some episodes of feeling not so good are a rare and not to be taken seriously. In my case, that period could not even last a full year. You can imagine the need to have to deal with the panic and uncertainty of your life on a daily basis. Furthermore, major problems in my condition and in many others, are the fatigue and brain fog. That feeling of tiredness is nothing to be compared with a regular one, which people experience, say after a long day. Also called lassitude, it is nerve fiber fatigue. The feeling is overwhelming and it comes for no apparent reason making all desires, plans, responsibilities look close to impossible.... Where that feeling leads to is to undermining and questioning one's abilities even in simplest activities. Clearly, the strain on the mentality, spirit and psychology as a whole translates into another dimension.
The mobilization that followed is what makes me think the human civilization can face and overcome colossal hardship when it has to. MS is a condition challenging a person down to the core and the outcome could be a better, more understanding and selfless man. Or it could be a broken spirit.... In my case, there are strict diets that followed, where close to no carbs are allowed, no diary or gluten either. The daily physical activities remained a must(as I have always been active). I also take daily injection, where I have to proudly say have not missed in 5.5 years. The whole drama is even with all those measures taken the MS has its course and slowly, but surely takes over.
Until....through MS social groups and personal research I came to realize there is a relatively new treatment called HSCT, involving chemo-therapy and stem-cells infusion proving so far to be the best there is on the market. I am aiming to attend the one in Moscow, as it is the cheapest and seems to have highest recommendations. Dr Fedorenko and his team have created an outstanding space, where faits are re-written!
The paradox of the situation is that even though being initially expensive, the treatment actually ends up cheaper for the society. For example, the hitherto mentioned injections I am on costs the medical care about 25 thousand Canadian dollars each year.(and that is one of the cheaper ones!) Furthermore, their effect is fading away each year. HSCT once done, does not require continuation on any type of meds! The success rate is 85%! As I mentioned, leader on the market.
My desire is potential donations, which may follow not to be looked down like: "Oh my Lord, poor kid....so unfortunate....here is some cash for you.'' I don't want this type of support , just to be clear. Instead, I would like people to think: "That is great! There is a cause I would like and can afford to participate in. That man looks like he is onto something, knows what he is aiming for, what he wants from life and does not seem to be giving up. I am not donating, but investing into the future prosperity of his and the people he could influence positively down the road.'' Mind you all reading my story, I am a teacher/sport's coach loving my job and I have my future dreams of development! Yet I am realistic in the knowledge of having the anchor of MS could prevent me from delivering my acquired wisdom to the future generations.
To summarize, anyone who feels for my case, believes in delivering some help from their hearts or simply has a good day and feels like contributing are welcome to do so. If not, I hope we'll all experience better days in the future and thank you for taking time to get introduced this MS journey!
pp: Please, take a look at the video below, which I recently added, so you can get to know more about what is actually going on in the MS world. To continue, if you have any relatives, friends or people you know, who are struggling with MS feel free to share the option of HSCT treatment. I participate in our monthly Zoom meeting, led by dr. Jen Stansbury Koenig. She is so awesome to have created the website: https://www.hsctwarriors.org/podcast ,
where you can access soooo much information about MS, various autoimmune conditions, tricks and treatments, amazing life stories and of course, detailed explanations of HSCT veterans. Thanks again for being so open to allow this story to influence your day/mindset!
https://www.youtube.com/watch?v=uAnX8Gi8p8M&ab_channel=HSCTM%C3%A9xico
Instead, I would rather use my personal example as an inspiration for all the people in grave needs that there are options, other alleys and an individual should not disregard their hopes - period. In other words, during the deepest crisis of our lives(no matter due an illness or for other reason) people tend to feel lonely, depressed and left behind. Not true! Or it doesn't have to be! I-myself, believe in the good side of the people! In many cases, just a minute of attention or a nice word can bring the inner strength up and inspire a human being in need. That happened to me many times during the rollercoaster of MS. Therefore, my appeal here is for joining and supporting my strong faith not to give in this horrible condition and to eventually come out as successful and fully capable, as dr. Wahls calls us, MS warriors :)
A typical story for a MS diagnosed man/woman is as it follows...Originally a stage of denial kicks in where you tend to believe you are healthy and some episodes of feeling not so good are a rare and not to be taken seriously. In my case, that period could not even last a full year. You can imagine the need to have to deal with the panic and uncertainty of your life on a daily basis. Furthermore, major problems in my condition and in many others, are the fatigue and brain fog. That feeling of tiredness is nothing to be compared with a regular one, which people experience, say after a long day. Also called lassitude, it is nerve fiber fatigue. The feeling is overwhelming and it comes for no apparent reason making all desires, plans, responsibilities look close to impossible.... Where that feeling leads to is to undermining and questioning one's abilities even in simplest activities. Clearly, the strain on the mentality, spirit and psychology as a whole translates into another dimension.
The mobilization that followed is what makes me think the human civilization can face and overcome colossal hardship when it has to. MS is a condition challenging a person down to the core and the outcome could be a better, more understanding and selfless man. Or it could be a broken spirit.... In my case, there are strict diets that followed, where close to no carbs are allowed, no diary or gluten either. The daily physical activities remained a must(as I have always been active). I also take daily injection, where I have to proudly say have not missed in 5.5 years. The whole drama is even with all those measures taken the MS has its course and slowly, but surely takes over.
Until....through MS social groups and personal research I came to realize there is a relatively new treatment called HSCT, involving chemo-therapy and stem-cells infusion proving so far to be the best there is on the market. I am aiming to attend the one in Moscow, as it is the cheapest and seems to have highest recommendations. Dr Fedorenko and his team have created an outstanding space, where faits are re-written!
The paradox of the situation is that even though being initially expensive, the treatment actually ends up cheaper for the society. For example, the hitherto mentioned injections I am on costs the medical care about 25 thousand Canadian dollars each year.(and that is one of the cheaper ones!) Furthermore, their effect is fading away each year. HSCT once done, does not require continuation on any type of meds! The success rate is 85%! As I mentioned, leader on the market.
My desire is potential donations, which may follow not to be looked down like: "Oh my Lord, poor kid....so unfortunate....here is some cash for you.'' I don't want this type of support , just to be clear. Instead, I would like people to think: "That is great! There is a cause I would like and can afford to participate in. That man looks like he is onto something, knows what he is aiming for, what he wants from life and does not seem to be giving up. I am not donating, but investing into the future prosperity of his and the people he could influence positively down the road.'' Mind you all reading my story, I am a teacher/sport's coach loving my job and I have my future dreams of development! Yet I am realistic in the knowledge of having the anchor of MS could prevent me from delivering my acquired wisdom to the future generations.
To summarize, anyone who feels for my case, believes in delivering some help from their hearts or simply has a good day and feels like contributing are welcome to do so. If not, I hope we'll all experience better days in the future and thank you for taking time to get introduced this MS journey!
pp: Please, take a look at the video below, which I recently added, so you can get to know more about what is actually going on in the MS world. To continue, if you have any relatives, friends or people you know, who are struggling with MS feel free to share the option of HSCT treatment. I participate in our monthly Zoom meeting, led by dr. Jen Stansbury Koenig. She is so awesome to have created the website: https://www.hsctwarriors.org/podcast ,
where you can access soooo much information about MS, various autoimmune conditions, tricks and treatments, amazing life stories and of course, detailed explanations of HSCT veterans. Thanks again for being so open to allow this story to influence your day/mindset!
https://www.youtube.com/watch?v=uAnX8Gi8p8M&ab_channel=HSCTM%C3%A9xico
Organizer
Yavor Milanov
Organizer
East York, ON
