Support Ava's Mummy with MND

The beautiful Sonia was diagnosed with MOTOR NEURONE DISEASE on the 24th January 2014. She was 33 years old at the time of her diagnosis, and it was just a month after she got engaged.  
 
Sonia began with weakness in her left hand and changes in her voice and swallowing especially in times of stress.  It took a few months to diagnose Sonia as initially the doctors thought she may have been suffering from a virus that would clear in a few months.  

Sonia and her fiancé Michael, decided that this diagnosis would not stop them from living.  She fell pregnant a few months after her diagnosis and gave birth to a beautiful little girl, Ava, on the 6th of February 2015.  

Up until Ava was 2 months old, Sonia was walking and eating. The acceleration of weakness began thereafter. 

She had a peg put in May 2015 because she was losing too much weight as a result of not being able to swallow enough food to sustain her body.  Her speech kept deteriorating and has not been able to talk since October 2015.  

Another heartbreaking outcome of this disease is that Sonia is no longer able to walk and needs assistance in her daily activities. 

Sonia is staying at home with her family and carers come to help us with basic procedures.

 Up until March 2016 she was using a cpap machine for assisted breathing only overnight while sleeping and on the odd occasion when she felt out of breath.  Unfortunately she using the cpap machine 24 hours a day and only has it off for a few minutes while she is being transferred to the bed or taken to the toilet.  

Sonia is a gorgeous, strong and loving mother. Sonia is fighting as much she can to see her daughter Ava grow up and be around her and Michael. 

We would like to thank you for any donation which can support Sonia and her young family.

Kristy Volkova (Ava's babysitter) has initiated and is running this campaign (with the support of Sonia's sister).  Kristy's life has been so dearly touched by Sonia and Ava that it motivated her to do more.

Donations ()

  • Tasmyn Blewett 
    • $100 
    • 43 mos
  • Anonymous 
    • $500 
    • 43 mos
  • Kenneth Coppin 
    • $1,275 
    • 44 mos
  • Sarah Thillagaratnam  
    • $150 
    • 44 mos
  • John Thompson 
    • $800 
    • 44 mos
See all

Organizer

Grant OShaughnessy 
Organizer
Padbury, WA
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