My niece, Madison Hickey just celebrated her 7th birthday! When she was born seven years ago with a rare (1 in 100,000)
congenital brain malformation known as Lissencephaly, the doctor's weren't very optimistic about her chances for survival. Lucky for us, Maddi has been in the business of proving the doctors wrong since she was a tiny baby.
The seizures that they worried about are under control, and although she requires assistance, Maddi can eat, and is growing like a weed. Though cerebral palsy prevents her from being able to fully bear weight or walk, she bunny hops and is learning to walk.
Sadly, the Hickey's current vehicle is too old to support installing a lift gate so that Maddi's wheelchair can just roll in. And Maddie no longer fits anything other than a "big girl" wheelchair. Both Maddi and her older brother, James, 13, who was born with a rare craniofacial syndrome, and is tube-fed, completely deaf and legally blind, need to be shuttled to appointments on the Central Coast and from Sydney to Newcastle.
And the family, Mum and Dad, LeeAnne and Rob, with big brother Rhys, 11, just like to get out and spend time altogether like any other active family. Despite the financial and logistical difficulties that go along with having two disabled, medically fragile children, or maybe because of it, being able to all go places together as a family, like the park, or ice cream really makes things seem normal and manageable.
Can you be this family's SuperHero? Every "SHARE" and donation (no matter how tiny) will go a long way in helping the Hickey family and their goal of a vehicle that will enable their special family have a "regular" life. #GetMaddiMoving
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- Laila Dawe
- Lyn Hull
- Traci Cole
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