Walk with Aryani

This strong and beautiful testimony of the Lord is my daughter Aryani Marie Tolenoa Kosam. She would prefer all her new friends and family to call her “ Nani Kosam “.  ☺️

          Our story begins on the topical island of Guam “Where America's Day Begins “.  On July 18,2013 we ( Nikita Tolenoa & Riny Kosam) received an early gift 6 months to be exact. Our early grift was our daughter weighing 800grams, Aryani Marie Tolenoa Kosam. At this weight we knew the odds were against her. But this fighter never backed down. 

Round 1:
        On this corner Aryani weighing 800grams and her opponent on the other corner was time. Time was never a friend of ours. When Aryani did not pee for five days after being born the doctor stated that she had some intestines that died. This has caused her stomach and her right leg to get swollen. As I was saying time was not on our side it was merely a ticking time bomb. He gave us two options sign the permission to let them give her a colostomy and cut her right upper thighs to insert IV line because her hands were too small or let it be and hope for best that she urinates. A colostomy was a surgical operation in which a piece of the colon is diverted to an artificial opening in the abdominal wall so as to bypass a damaged part of the colon. Now as a parent I refuse to sit back and watch my baby deteriorate. But we ( Aryanis’ father Riny Kosam )had only a few hours to decide our daughters fate. We decided to give her a colostomy  knowing  that the surgery can be risky because if she had more than a few inches of intestines that died are deep than she won’t make it. After hours of waiting our fighter came out that room and she won this round. 


Round 2 : 
        Aryani was able to urinate and she was doing well with her bowel movements after the surgery. As young parents you never expect to change your  baby’s diapers while clipping on the metal to her colostomy bag.  She is a fighter and she made sure everyone knew that. Just when we thought we were smooth sailing, Aryanis’ heart stopped and so did mine.  Her monitor started to ring like a fire alarm in my head. Nurses and doctors rushed to her aid but when they put the CPAP on her nose it damaged the Nasal septum ( cartilage that separates the nostrils). The CPAP was necessary because it helped her breathe but the only reason it was easily damaged was because her cartilage was still too soft for the CPAP.

Round 3:
       Fast forward at 4years old this girl crawls around wearing her battle scars on the daily. Aryani does not walk because her right leg is shorter than the left leg and it was bruised from the opening of her IV line. She has a cut to show her colostomy which was reversed when she was 6months. So now she does her bowel movement just like you and I. Aryanis nose is a little different than ours because of the CPAP incident  but she reminds me of a superhero that has the ability to blend in to look like us. But now Aryani was thrown another curve ball. She is recently admitted in the hospital because she had a seizure. CAT Scan shows her lower brain was never fully formed. This brain controls motor skills. This will require more test because the doctors on this island are not equipped and experienced enough to guide us. Everytime I think we are one step ahead we get hit so hard that I want to stay down. But this fight is not for me this is for Aryani and if she decides to keep fighting than I will fight right beside her. 

   Objective:
    We ( Aryanis’ Family ) thought we could do this on our own but now that we have more complications added to our list we ask the public to please help donate for Aryanis medical needs. She will need a Nose surgery’s for the nasal septum that broke during the CPAP, a surgery for her knee because it was swollen when she did not urinate for the five days she was in the hospital, and she will need to see a brain specialist in the states to determine how do we proceed knowing her back brain was never fully formed. This GoFundMe account will be a starting base for us to get Aryani out of this island so she can receive better medical treatment she needs from doctors in the states. We live on the small island of Guam so buying a flight out to the states is not easy. We will use  any remaining money collected to provide for her needs such as getting a wheelchair or brace after her surgery for her right leg. 
If you have any questions feel free to message or contact me. 

Thank You,
Nikita Tolenoa ( mommy Kosam)
Riny Kosam ( daddy Kosam )