Please help my daughter

My daughter has been suffering quite immensely with her health on a day to day basis to a point where she’s struggling to complete or maintain just basic requirements, she hasn’t even the ability to attend 6th form or leave the house as her condition is so severe. She is experiencing frequent disturbances with her bowels, this is usually accompanied by tremendous pains and aches in her stomach, and her lower abdomen has a tendency to swell significantly. Furthermore she is constantly battling with nausea and vomiting despite what it is she eats. My daughter has also been diagnosed with multiple autoimmune diseases/disorders, this includes: Hyperthyroidism, Reynard's phenomena, Tachycardia, anaemia, Coeliac disease, (if she even has an accidental ingestion of gluten she has such symptoms that she is hospitalised.) She also suffers with consistent and severe headaches and migraines. My daughter is tremendously weak and fatigued, she is so limited that she is required to wear a brace across her back just to support her.

Noura is under investigation for bowel and intestinal issues, however this is taking so long under the NHS (she was referred in March 2020) I’m literally watching my daughter wither away, she is drastically underweight, weighing just 46kg at 5ft 10. I can’t take seeing this day to day, I will be carrying my daughter as a pile of bones to her next gastroenterology appointment that’s not due untill the 27th June, even then still she will have to wait further for the test to be organised, then comes the waiting list. I’ve begged and pleaded with the gastro unit to expedite her appointment even getting supporting letters from her GP and paediatrician but still no success. Her health is so bad she had open access to the children’s ward but they can only make her feel comfortable with pain medication.

Please help if I get her seen privately they can then organise the proper investigations.

I feel like I’m watching my baby die, seeing her in such pain both physically and mentally is breaking my heart, please help my daughter so she can live her life. Thank you.