Tyler Mayberry's Medical Fundraiser
Donation protected
Dear family and friends,
We cannot thank everyone personally for the prayers, texts, calls, emails and messages regarding Tyler; it has meant so much, we thank you all! We know many of you are wondering what has happened. Now that Tyler is awake, alert and oriented, he's decided that updating all our friends and family through Caring Bridge would be a much better approach than trying to reach out to each of you personally. His mother Maria and I (his paternal aunt), will do our best to update everyone as much as possible regarding his condition.
First, we'd like to say, Tyler is a fighter! And we give thanks to GOD for his blessings thus far.
At the beginning of the week of February 22nd, Tyler got sick. He saw a doctor and was told he had an ear infection and was given an antibiotic. He was tested for Covid and it was negative. Tyler stayed home from work. Then on February 24th, Tyler got a fever. Then on February 26th, he took himself to the ER. There he had labs, etc. done, but he was sent home with a new antibiotic. He tested negative again for Covid. On Saturday February 27th, he still had a fever and started to cough early that evening and it continued throughout the night. He also began having shortness of air. Around 2:30 a.m. Sunday morning (Feb. 28th), his wife Emili took him back to the ER for a 2nd time. His symptoms were fever, coughing and shortness of air. He was very weak to where he could not walk into the ER and had to be wheeled in by a wheel chair. By that time, he could not speak to tell them why he was there. Despite having been tested negative three times at that point, he was being treated as a Covid patient and his wife could not stay with him.
He was admitted to the hospital on Sunday, February 28th, 2021 into the ICU. By late afternoon, he was placed on a ventilator. The only things we know about the events that took place after Emili had to leave after dropping him off early that morning is that he continued to struggle to breathe and the oxygen was not enough to help him. Emili was slightly briefed on his condition via phone (again, she was not allowed to stay) before he was placed on a ventilator and then approximately 10 minutes later she received the call that within those 10 minutes he worsened and had to be placed on it. THIS WAS OUR WORST NIGHTMARE!
We were advised his kidneys were shutting down and told he'd have to have dialysis for 24 hours and maybe a few more sessions. We also got the news that they found out he had a heart attack. It is unknown of when the heart attack occurred. The medical team was unsure of all his diagnosis's but felt he would be off the ventilator by the end of the week. That night we were told he was going to have a central line and port placed into his neck for dialysis.
The next morning, we were updated that Tyler had a rough night and they could not get the central line in as expected. They eventually got it in that day. However, more news came that his blood pressure kept dropping and he spiked a fever of 106. It was not looking good. He had cold packs and blankets on/off of him in an effort to reduce his temperature.
March 2nd we got an update that although his Covid tests came back negative, his antibody test came back positive for Covid which meant at some point he had an active case of Covid. He began showing signs of improvement this day and they began reducing the ventilator setting and sedation. As well, he was tolerating the dialysis. They also were able to reduce more of the blood pressure medication. Emili was only allowed to go up for 15 minutes those first couple of days, but this day was a better one because his mom got to FaceTime while she was there and Tyler's body was showing signs of being more awake (not heavily sedated).
Unfortunately though, later during the day of March 2nd, more bad news came. They found another underlying issue; he had sepsis. Another battle to hurdle.
The next day, March 3rd, he was completely taken off the blood pressure medication, his blood pressure was holding normal at this point and he had held a normal temperature for 24 hours. The goal at that point was to try to remove him off the dialysis by the end of the day. He was still on the ventilator, but it had been turned down to a 5, which was good. He was still sedated. The cardiologist advised he wanted to try doing a heart Cath the following week and we were told they would begin to actually wake him up some time this day and possibly get him off the ventilator.
Also on this day, his parents got to briefly visit with him. It was tough on them, as any parent can imagine. Only allowed one visitor at a time, his mom gave the family great news that while she was with him and talking to him, he was moving his legs a little bit and moving his eyes. This was more hope! They did not try to take him off the ventilator as expected though.
March 4th, early that morning, we got the text to PRAY! They were going to attempt to extubate him. We prayed for a successful extubation and for him to tolerate breathing without the vent. We also prayed that his anxiety would be minimal and that could tolerate the actual removal. Something to know is that upon admittance to the ER, Tyler had anxiety, which continued to increase. He tried to unconsciously fight by pulling his tubes out and that led to him having to be in cuffed hand restraints that first night (and they were on the entire length that the ventilator was in place). Even ventilated and cuffed he continued to try and fight. While this was not good for his wrists and horrible to hear, we, as his family, knew this was a good sign that our Tyler was fighting. He is a fighter, which is where the hashtag Tyler Strong came about #tylerstrong.
Unfortunately, the extubating was not successful.
The following morning, March 5th, Emili updated us that he was a lot more alert and "man he is getting so mad at them." He kept trying to pull the tube out himself, he was fighting so badly. Emili had a tiny bit of humor that morning because as Tyler was not so heavily sedated anymore, he rolled his eyes and shrugged his shoulders at her. She also advised that he did get "out" communicated to her and she told him if he listened and stayed calm, they would get it out and remove the straps off his hands. Lovingly, she told him to do this so he could move and position himself to how he would feel comfortable. But, he was still mad. This was beautiful news to us, as there was more signs of hope and life. Yes, life. One that we didn't know we'd get back. Tyler had been fighting for his life. We had no clue if we'd get him back.
THE BEST NEWS EVER came shortly after that update. On March 5th the tube was taken out by the medical team. We had Tyler back!
His condition was still critical and by no means was his medical journey over. He was on oxygen, still sedated and groggy.
March 6th he was completely off oxygen. He was doing well on room air. He had finished the decreasing titrations for the sedation medication and was completely off it. Groggy but improving.
The few days that followed consisted of weakness, body shaking and fatigue. He was getting stronger each day. His NG tube was taken out and he was put on a clear diet that then lead to a healthy heart and kidney diet (low/no salt). He was eventually moved to a regular floor/room. His kidneys were starting to work a little better and he had to continue with dialysis.
The cardiologist advised he was holding off on the heart Cath because the dye they use is very hard on the kidneys and they did not want to overwhelm them. More good news from the cardiologist too was that he is pretty confident that Tyler does not have any blockages, but he has to medically "prove" it. This is undetermined as to when Tyler will have this procedure.
On March 10th, the pulmonologist and medical team advised they were pretty sure that Tyler has Multiple System Inflammatory Syndrome or Kawasaki Syndrome, which is rare and usually only affects children. This is actually brought on by having Covid-19. This day too, Tyler was advised he would require dialysis for at least 3 more months.
The following two days he continued with dialysis, resting and trying to gain strength back. As well, a treatment care plan was made for him by the medical team.
This past Friday, March 12th, Tyler had improved enough medically to be transported to a rehabilitation facility. And that's where he currently is at this time. His goals are to continue to get dialysis, his strength back, kidneys functioning well and figure out the unknown amount of damage his body really has from everything that has happened to it.
The days ahead will be long, hard and tough. He doesn't recall much after being wheeled into the ER on that frightful early morning on February 28th. He has no clue when he had Covid, as he only began to feel sick the first part of the week of February 22nd (and had three negative tests). He's grasping that his body doesn't move or work the way he wants it to. He's thankful to be alive and is ready to face the days ahead, as he wants to live and be healthy.
As of writing this, we do not know how long he will be in the rehabilitation facility. We still do not know the extent of any damage his heart attack has caused and we don't know a lot about the syndrome they believe he has. His kidneys are in bad shape and his body has been through so much.
What we do know is that he misses his two boys, Jackson (8) and Clayton (22 months) like crazy and being at home with his family. His wife Emili has been strong throughout this journey. We couldn't ask for a better wife for him. Her love for him is undeniable. He is fighting daily.
We ask for continued prayers and support during this time. We will do our best at updating everyone once a week through this journal. Please forgive Tyler, Emili, his parents and the rest of us if we can't get back to you or haven't gotten back to you. Our focus is on his healing and helping them through this as best as possible.
Besides prayers, the best way to lend support is by donating money to help go towards living expenses and the medical bills that have already began rolling in (for a quick recap- 2 ER visits, 13 days in the hospital, on a ventilator for 6 days in ICU and now in a rehabilitation center). Tyler will not be returning to work anytime soon. He does have health insurance, but not the greatest plan. Emili does and is still working. As you can imagine, being only 30 years old, having two small children to care for and not being able to work is hitting Tyler pretty tough mentally and adds extra stress. He is not one to ask for help; he's one that always helps. We prayerfully ask for kindness, generosity and financial help at this time. Other needs will be listed soon.
Many blessings,
The Mayberry Family
#tylerstrong
#prayersfortyler
We cannot thank everyone personally for the prayers, texts, calls, emails and messages regarding Tyler; it has meant so much, we thank you all! We know many of you are wondering what has happened. Now that Tyler is awake, alert and oriented, he's decided that updating all our friends and family through Caring Bridge would be a much better approach than trying to reach out to each of you personally. His mother Maria and I (his paternal aunt), will do our best to update everyone as much as possible regarding his condition.
First, we'd like to say, Tyler is a fighter! And we give thanks to GOD for his blessings thus far.
At the beginning of the week of February 22nd, Tyler got sick. He saw a doctor and was told he had an ear infection and was given an antibiotic. He was tested for Covid and it was negative. Tyler stayed home from work. Then on February 24th, Tyler got a fever. Then on February 26th, he took himself to the ER. There he had labs, etc. done, but he was sent home with a new antibiotic. He tested negative again for Covid. On Saturday February 27th, he still had a fever and started to cough early that evening and it continued throughout the night. He also began having shortness of air. Around 2:30 a.m. Sunday morning (Feb. 28th), his wife Emili took him back to the ER for a 2nd time. His symptoms were fever, coughing and shortness of air. He was very weak to where he could not walk into the ER and had to be wheeled in by a wheel chair. By that time, he could not speak to tell them why he was there. Despite having been tested negative three times at that point, he was being treated as a Covid patient and his wife could not stay with him.
He was admitted to the hospital on Sunday, February 28th, 2021 into the ICU. By late afternoon, he was placed on a ventilator. The only things we know about the events that took place after Emili had to leave after dropping him off early that morning is that he continued to struggle to breathe and the oxygen was not enough to help him. Emili was slightly briefed on his condition via phone (again, she was not allowed to stay) before he was placed on a ventilator and then approximately 10 minutes later she received the call that within those 10 minutes he worsened and had to be placed on it. THIS WAS OUR WORST NIGHTMARE!
We were advised his kidneys were shutting down and told he'd have to have dialysis for 24 hours and maybe a few more sessions. We also got the news that they found out he had a heart attack. It is unknown of when the heart attack occurred. The medical team was unsure of all his diagnosis's but felt he would be off the ventilator by the end of the week. That night we were told he was going to have a central line and port placed into his neck for dialysis.
The next morning, we were updated that Tyler had a rough night and they could not get the central line in as expected. They eventually got it in that day. However, more news came that his blood pressure kept dropping and he spiked a fever of 106. It was not looking good. He had cold packs and blankets on/off of him in an effort to reduce his temperature.
March 2nd we got an update that although his Covid tests came back negative, his antibody test came back positive for Covid which meant at some point he had an active case of Covid. He began showing signs of improvement this day and they began reducing the ventilator setting and sedation. As well, he was tolerating the dialysis. They also were able to reduce more of the blood pressure medication. Emili was only allowed to go up for 15 minutes those first couple of days, but this day was a better one because his mom got to FaceTime while she was there and Tyler's body was showing signs of being more awake (not heavily sedated).
Unfortunately though, later during the day of March 2nd, more bad news came. They found another underlying issue; he had sepsis. Another battle to hurdle.
The next day, March 3rd, he was completely taken off the blood pressure medication, his blood pressure was holding normal at this point and he had held a normal temperature for 24 hours. The goal at that point was to try to remove him off the dialysis by the end of the day. He was still on the ventilator, but it had been turned down to a 5, which was good. He was still sedated. The cardiologist advised he wanted to try doing a heart Cath the following week and we were told they would begin to actually wake him up some time this day and possibly get him off the ventilator.
Also on this day, his parents got to briefly visit with him. It was tough on them, as any parent can imagine. Only allowed one visitor at a time, his mom gave the family great news that while she was with him and talking to him, he was moving his legs a little bit and moving his eyes. This was more hope! They did not try to take him off the ventilator as expected though.
March 4th, early that morning, we got the text to PRAY! They were going to attempt to extubate him. We prayed for a successful extubation and for him to tolerate breathing without the vent. We also prayed that his anxiety would be minimal and that could tolerate the actual removal. Something to know is that upon admittance to the ER, Tyler had anxiety, which continued to increase. He tried to unconsciously fight by pulling his tubes out and that led to him having to be in cuffed hand restraints that first night (and they were on the entire length that the ventilator was in place). Even ventilated and cuffed he continued to try and fight. While this was not good for his wrists and horrible to hear, we, as his family, knew this was a good sign that our Tyler was fighting. He is a fighter, which is where the hashtag Tyler Strong came about #tylerstrong.
Unfortunately, the extubating was not successful.
The following morning, March 5th, Emili updated us that he was a lot more alert and "man he is getting so mad at them." He kept trying to pull the tube out himself, he was fighting so badly. Emili had a tiny bit of humor that morning because as Tyler was not so heavily sedated anymore, he rolled his eyes and shrugged his shoulders at her. She also advised that he did get "out" communicated to her and she told him if he listened and stayed calm, they would get it out and remove the straps off his hands. Lovingly, she told him to do this so he could move and position himself to how he would feel comfortable. But, he was still mad. This was beautiful news to us, as there was more signs of hope and life. Yes, life. One that we didn't know we'd get back. Tyler had been fighting for his life. We had no clue if we'd get him back.
THE BEST NEWS EVER came shortly after that update. On March 5th the tube was taken out by the medical team. We had Tyler back!
His condition was still critical and by no means was his medical journey over. He was on oxygen, still sedated and groggy.
March 6th he was completely off oxygen. He was doing well on room air. He had finished the decreasing titrations for the sedation medication and was completely off it. Groggy but improving.
The few days that followed consisted of weakness, body shaking and fatigue. He was getting stronger each day. His NG tube was taken out and he was put on a clear diet that then lead to a healthy heart and kidney diet (low/no salt). He was eventually moved to a regular floor/room. His kidneys were starting to work a little better and he had to continue with dialysis.
The cardiologist advised he was holding off on the heart Cath because the dye they use is very hard on the kidneys and they did not want to overwhelm them. More good news from the cardiologist too was that he is pretty confident that Tyler does not have any blockages, but he has to medically "prove" it. This is undetermined as to when Tyler will have this procedure.
On March 10th, the pulmonologist and medical team advised they were pretty sure that Tyler has Multiple System Inflammatory Syndrome or Kawasaki Syndrome, which is rare and usually only affects children. This is actually brought on by having Covid-19. This day too, Tyler was advised he would require dialysis for at least 3 more months.
The following two days he continued with dialysis, resting and trying to gain strength back. As well, a treatment care plan was made for him by the medical team.
This past Friday, March 12th, Tyler had improved enough medically to be transported to a rehabilitation facility. And that's where he currently is at this time. His goals are to continue to get dialysis, his strength back, kidneys functioning well and figure out the unknown amount of damage his body really has from everything that has happened to it.
The days ahead will be long, hard and tough. He doesn't recall much after being wheeled into the ER on that frightful early morning on February 28th. He has no clue when he had Covid, as he only began to feel sick the first part of the week of February 22nd (and had three negative tests). He's grasping that his body doesn't move or work the way he wants it to. He's thankful to be alive and is ready to face the days ahead, as he wants to live and be healthy.
As of writing this, we do not know how long he will be in the rehabilitation facility. We still do not know the extent of any damage his heart attack has caused and we don't know a lot about the syndrome they believe he has. His kidneys are in bad shape and his body has been through so much.
What we do know is that he misses his two boys, Jackson (8) and Clayton (22 months) like crazy and being at home with his family. His wife Emili has been strong throughout this journey. We couldn't ask for a better wife for him. Her love for him is undeniable. He is fighting daily.
We ask for continued prayers and support during this time. We will do our best at updating everyone once a week through this journal. Please forgive Tyler, Emili, his parents and the rest of us if we can't get back to you or haven't gotten back to you. Our focus is on his healing and helping them through this as best as possible.
Besides prayers, the best way to lend support is by donating money to help go towards living expenses and the medical bills that have already began rolling in (for a quick recap- 2 ER visits, 13 days in the hospital, on a ventilator for 6 days in ICU and now in a rehabilitation center). Tyler will not be returning to work anytime soon. He does have health insurance, but not the greatest plan. Emili does and is still working. As you can imagine, being only 30 years old, having two small children to care for and not being able to work is hitting Tyler pretty tough mentally and adds extra stress. He is not one to ask for help; he's one that always helps. We prayerfully ask for kindness, generosity and financial help at this time. Other needs will be listed soon.
Many blessings,
The Mayberry Family
#tylerstrong
#prayersfortyler
Organizer and beneficiary
Niles Charlet
Organizer
Crestwood, KY
Emili Mayberry
Beneficiary