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Trace’s Fight Against ALD

$32,015 of $40,000 goal

Raised by 314 people in 2 months
Created June 18, 2019
Fundraising Team
on behalf of Matt Thompson
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Matt and Britany Thompson recently received heartbreaking news that their 9 year old son, Trace, has been diagnosed with Adrenoleukodystrophy (ALD). ALD is a very rare genetic disorder that affects the nerves in the brain controlling functions such as thinking and muscle control. This degenerative neurological condition is life-threatening and disproportionately affects young males.

Trace was originally diagnosed with Addison’s disease after recent unexplained hospitalizations. While searching for the root cause of Addison’s disease, the diagnosis of ALD was discussed. After a positive blood test and a subsequent MRI, they confirmed this diagnosis. Unfortunately, there is no cure for ALD. A bone marrow transplant and gene therapy are the only procedures used to help slow the progression of this disease. After consulting numerous doctors in both Tallahassee and Gainesville, Britany and Matt traveled with Trace to Minnesota to meet with a care team who specialize in pediatric ALD. The doctors informed the family that Trace is ineligible for gene therapy, and that a bone marrow transplant would be his best option. A bone marrow transplant carries many risk in itself and could potentially activate disease progression, so it has not been an easy decision, but this family is willing to do everything they can to help Trace fight ALD. 

We are starting this Go Fund Me page to ease the financial burden on the Thompson family as they navigate through this difficult journey. All funds raised will help cover travel costs to/from Minnesota, out-of-pocket medical bills, and living expenses. These upcoming days, weeks and months will require Matt to spend a significant amount of time away from his job. We are hoping to alleviate the financial burden so their family can focus on Trace as he fights for his life.

The Thompson family are not the type to ask for help, but at this time their family and friends know financial support will be helpful in their ability to focus on Trace’s care and this difficult journey ahead. Matt, Britany, Trace and Daughtry truly appreciate all of your love, support and prayers!
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Thank you to everyone for your thoughts, prayers and generous donations. Matt and Britany would not be able to both be physically present during this difficult journey, if it weren’t for all of you. They are forever grateful!

Matt, Britany and Trace traveled to Minnesota earlier this week to begin the initial process of gene therapy replacement. It’s been a difficult week as Trace began injections to help his body produce more cells for upcoming retrieval. This week he will be admitted to the hospital for cell retrieval and then the family will travel home while those cells are being modified. The Thompsons have started looking for apartments in Minnesota for the next long stretch of their journey, that will begin in August. Trace will then begin chemotherapy, the gene therapy replacement and recovery. Our hopes are that Matt can remain in Minnesota with his family and not have to travel home for work. Thank you all for making this a possibility.

You can follow Tough as Trace on Facebook for updates on Trace and his journey.

Thank you again, on behalf of Matt and Britany!
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On behalf of Matt and Britany, I wanted to thank all of you for your sweet comments, prayers, love and generous donations to the Thompson family. Words can’t express how they feel right now. They are completely overwhelmed and so grateful! Thank you for helping this family get the help they need for Trace, as he begins the biggest fight for his life.
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$32,015 of $40,000 goal

Raised by 314 people in 2 months
Created June 18, 2019
Fundraising Team
on behalf of Matt Thompson
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$50
Betty Edwards
6 days ago
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$65
Meghan Whitney
9 days ago
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$250
Laura Beagle
10 days ago
$100
Heather O'Kelley Stitely
10 days ago
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$100
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15 days ago
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$25
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22 days ago
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