Together Let's Stand With Ethan
Donation protected
My desire is to help a family on their journey with childhood rare disease.
This NEXT step is to move their life closer to British Columbia Children's Hospital to be more available for Ethan's medical needs, treatments etc.
Please settle back and read their story.
Julia and I met 5 years ago at a workshop. Our friendship developed from there and with it the honor of meeting her handsome, intelligent, kind hearted son Ethan.
Raising a child with a rare disease, or more precisely; rare and challenging diseases and life threatening conditions, is OFTEN,,, quite often, a lonely, harrowing journey for families..
Metaphorically speaking it can be like climbing snow covered mountains, fording raging rivers and traversing minefields into the medical world of the unknown.
Little by little their story was shared with me. It took quite a while for Julia to feel safe enough to open up, because of the trauma she has faced from others who felt the need to condemn, disbelieve, contradict and nullify the true knowledge about the harsh realities surrounding Ethan's health conditions and rare disease.
They travel constantly between medical, educational and therapeutic appointments in the hope of finding answers to provide the best quality of life possible.
To that end, after walking a path of struggle and rejection from schools, summer camps, forest schools, swimming groups and other children's activities, Julia along with her friend Kendra Gale, created a Summer Camp. Other children attended, to play, learn about horses and life, and engage in the joy of simply being a child. This place where Ethan felt that he belonged created lasting memories and friendships.
Asking for help is very hard for them due to past traumatic experiences with people. .
What is shared publicly about Ethan's pain and struggles is merely a minute glimpse into their daily reality.
What you dont see, that I see, is the daily, time consuming and daunting tasks of the administration and logistics of working within the health care system.
On top of this are emotional, mental, physical and financially draining aspects of daily life --
Such as:
*medical needs not covered by insurance including medicine
*immense expenses of a strict medically necessary diet.
*expenses of travel for medical appointments, tests, treatment and therapies.
Every month this year Ethan has been in BC children's hospital at least once, sometimes 3 times with:
*Emergency ER visits
*Admittances
*Emergency Medivac
*Emergency EMS attendance
*MRI
*ultrasounds
*Xrays
*Numerous blood tests
*Numerous specialists
And the list goes on.....
As they work together towards finding answers and treatments so Ethan can thrive in life.
Can you please help me, help them to relieve some of these burdens by either sending a donation or simply leaving an encouraging comment to let this family know you care.
THANK YOU
This NEXT step is to move their life closer to British Columbia Children's Hospital to be more available for Ethan's medical needs, treatments etc.
Please settle back and read their story.
Julia and I met 5 years ago at a workshop. Our friendship developed from there and with it the honor of meeting her handsome, intelligent, kind hearted son Ethan.
Raising a child with a rare disease, or more precisely; rare and challenging diseases and life threatening conditions, is OFTEN,,, quite often, a lonely, harrowing journey for families..
Metaphorically speaking it can be like climbing snow covered mountains, fording raging rivers and traversing minefields into the medical world of the unknown.
Little by little their story was shared with me. It took quite a while for Julia to feel safe enough to open up, because of the trauma she has faced from others who felt the need to condemn, disbelieve, contradict and nullify the true knowledge about the harsh realities surrounding Ethan's health conditions and rare disease.
They travel constantly between medical, educational and therapeutic appointments in the hope of finding answers to provide the best quality of life possible.
To that end, after walking a path of struggle and rejection from schools, summer camps, forest schools, swimming groups and other children's activities, Julia along with her friend Kendra Gale, created a Summer Camp. Other children attended, to play, learn about horses and life, and engage in the joy of simply being a child. This place where Ethan felt that he belonged created lasting memories and friendships.
Asking for help is very hard for them due to past traumatic experiences with people. .
What is shared publicly about Ethan's pain and struggles is merely a minute glimpse into their daily reality.
What you dont see, that I see, is the daily, time consuming and daunting tasks of the administration and logistics of working within the health care system.
On top of this are emotional, mental, physical and financially draining aspects of daily life --
Such as:
*medical needs not covered by insurance including medicine
*immense expenses of a strict medically necessary diet.
*expenses of travel for medical appointments, tests, treatment and therapies.
Every month this year Ethan has been in BC children's hospital at least once, sometimes 3 times with:
*Emergency ER visits
*Admittances
*Emergency Medivac
*Emergency EMS attendance
*MRI
*ultrasounds
*Xrays
*Numerous blood tests
*Numerous specialists
And the list goes on.....
As they work together towards finding answers and treatments so Ethan can thrive in life.
Can you please help me, help them to relieve some of these burdens by either sending a donation or simply leaving an encouraging comment to let this family know you care.
THANK YOU