Mia's medical fund.


(This is Mia Lee on her first birthday in March 2017.)
Our daughter Mia was born a healthy and beautiful baby. We never thought that what we were going to find out will cause our life to change forever. When Mia was 6 months she caught a cold and ever since then she will always be sick. From having ear infections to sores in her mouth, stomach flu etc. We didn't find out about her condition until after her 1st birthday. After we switch her from formula to whole milk she became constipated. After giving her prune juice, switching her to 2% milk to even giving her soy she still wouldn't poop. That is when we notice that the left side of her stomach was enlarged and it felt hard. So I took her to urgent care and they did an x-ray and notice that it was just buildup of poop. So they prescribe some medicine to help make her stool soft. But from the x-ray they notice that her spleen and liver was enlarged. So they referred us to go to Children's hospital that same day to get a better understanding of why the liver and spleen was large. So we took her to children's hospital and they did an ultrasound to see her liver and spleen, the doctors didn't know why it looked like that so we got admitted to the hospital on March 31st 2017. Over the weekend the doctors ran multiple tests but still couldn't figure out why. So on Sunday April 2nd 2017 - they came to a conclusion that for the liver and spleen to be enlarged is that either she had leukemia or Osteopetrosis but the only way to find out was to draw blood and have it tested. So when we got discharged from the hospital we went home not knowing what was wrong with our daughter. For 3 weeks while we waited for the test results to come back, we pray that it was nothing serious. On April 24th 2017 - we met with the hematologist doctor and they have confirmed that Mia was diagnosed with the condition call Osteopetrosis, a rare genetic born disease. After several genetic tests, it has concluded that my husband and I are both carriers of that gene. We were told that with her condition she will most likely become blind and deaf and will only live up to 7 years of age if we don't go through with the treatment. And the only treatment is to have a bone marrow transplant. Having the transplant is not even going to help stop the condition that she has but will help slow it down so she will have the chance to live longer. After 2 months of thinking and going over all the information we have decided to go through with the transplant, thankfully I matched to be her donor. On July 10th, we returned to the hospital every day in preparation for her transplant. On July 28th she was admitted to the U of M, Masonic children's hospital. The very next day she started chemotherapy up until August 9th, her transplant day. Thankfully the transplant was successful, but yet we’re still playing the waiting game to see if her body will reject the cells or will take it as her own and make new ones. The donation will go towards her medical expenses, even with medical insurance there is still a huge portion that cannot be covered by the insurance.

Thank You.

( Today she has a fever of 103, they have provided an oxygen mask to help her breathe while she sleeps.)


(Due to sores inside of her mouth, she couldn't eat or drink anything for the past few days. The doctor's gave her several bags of multi-vitamins and fat to help her along the way.)

Donations

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  • Sarah Trachtenberg 
    • $10 
    • 39 mos
  • Leng Moua 
    • $25 
    • 39 mos
  • Dang Her 
    • $40 
    • 39 mos
  • Anonymous 
    • $100 
    • 39 mos
  • Noukue Vue 
    • $20 
    • 39 mos
See all

Organizer and beneficiary

Pkvienna Yaj 
Organizer
St. Paul, MN
Panhia Yang 
Beneficiary
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