My beautiful girl; where do i start? As each year has gone by, you have been challenged with another symptom but never did I think it would come to this.  My once active, compassionate soul, straight A student, now is pulled from school due to so much cognitive decline and fatigue; along with all the other symptoms of pain and suffering.  I see you maybe 2 days a week; the rest is spent in your bed; fighting sleep, or in too much pain to be around everyone.   As a mother i have fought for answers, ever since you were little i have been looking for answers- i knew something was off.  It has just manifested into more- but the doctors say- you will have to find your own cure.  
We have great doctors- their training just isnt in depth enough to understand the complex issues of chronic disease- so patients are drugged to cope- i believe we can find her a cure- in fact i KNOW we can- i have found several people that have in one way or another found improvement in life- through alternatieve healing.  
We have located a doctor in Florida that has had success treating patients by literally cleaning out their cells.  We will use the funds raised to pay for the doctor; the supplements, the travel to and from, and whatever else is left- we will pass on to another that cant afford these treatments that medical doesnt cover here in the usa or in canada!  we will use the funds as we go- i cant even say how much i have spent on supplements and assessments to find my way here.....we are so close - we need to be able to focus on her and her alone- i am home full time now; caring for my kiddos, being away from the house i literally worry if she is alive- nothing can wake her- i go into her room and check her pulse, feel her head, kiss her and tell her i wont quit until i cure her- my baby girl- she has told me she would rather have cancer because at least they know a treatment.  She has said i dont want to live like this - what is the point? A life of suffering?  I know that anyone with a child knows the heartache of being helpless in knowing what to do to make your child better- I told Taylor that we can ask for help- she doesnt believe others would help her raise funds to afford these treatments- i told her she is wrong- please please please help me get help for my girl so she can live free of all of this; so i can see her shine with confidence again; so i can watch her dance like she used to; so she can pursue her beautiful singing career; so she can touch others with her warm heart and have the energy to give to others the way she does- her love fills a room, her smile is rare- when i get it- its all that matters.  OUR FAITH IN HUMANITY WILL BE CHANGED BY THIS EXPERIENCE- I NEED HER TO KNOW THE WORLD CARES! We are going to keep notes to help others......tears stream down my face as i write this- i know im all over the place on what to say- as i am searching and desperate to save my girl........  i will be so forever grateful to all that help us.......thank you!!!!


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Tami Zigabarra 
Mount Pleasant, SC

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