As of late my ALS has been catching up with me, my arms and hands are totally gone as most of you may know, it is now my legs that are giving out on me.
Everyday I am told how strong I am and how inspirational I am.
My strength has been exasperating as well, When someone tells me this I smile and say thank you, and that you can do it too, dig deep and do your best. Stay positive!
I feel like I can't take my own advice anymore, I'm feeling very vulnerable and some days I put on that mask, but inside I'm curled up in the fetal position crying.
Pain has become an even greater factor in my life now more than ever,
That and with the lack of Mobility coupled with everything else from the last 5 years, until diagnosis 2 years ago.
The strength and positivity that you all see is becoming mostly on the outside.
I'm finding it hard to fathom being here for another couple years, like they are telling me. I cannot live in Assisted Living. I will not.
That being said... to my friends and family I'm sorry.
The battle has almost run its course , the battle has almost run its course, and I have decided too take peace in the arms of Oblivion at the end of January 2019.
I am looking for help to make an amazing summer happen for my son Tyler and I.
Most notably we would love to go to a Blue Jays game and see Toronto.
As well as visit family in Vancouver and Lethbridge.
On an income of disability I will need much help!
There are still things that I need to do with my son, more memories to share and more love to spread.
Thank you in advance for any and all help that you may provide.
And it is you all ... family, friends and all of the people in my Facebook family who helped keep me going each and every single day.
I love you all.
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