The MacDonald Family
Beschermde donatie
Helping out the MacDonald family during this difficult time.
Every little bit helps.
A Note from Anabelle’s Mom:
We are at Children’s again with Anabelle. She had a seizure at gymnastics Monday and we discovered yesterday that she has Idiopathic Pulmonary Arterial Hypertension (IPAH). It is quite serious, as it is a disease. It is also rare, 1 in a million people have it. Thankfully, it is treatable with aggressive intervention. We also have time on our side since she is only 4 and still growing. There have also been great developments over the past five years in regards to treatment. We will be here for another two weeks they think. Soon we will be learning our options for medication and possibly making a tough decision. We were told her best option is through a permanent line surgically implanted, which breaks my heart, but once she is better she can lead a normal life. We are pulling the horizon much closer, taking it moment by moment, and learning about what our new normal will be like. Keep my family in your prayers.
Every little bit helps.
A Note from Anabelle’s Mom:
We are at Children’s again with Anabelle. She had a seizure at gymnastics Monday and we discovered yesterday that she has Idiopathic Pulmonary Arterial Hypertension (IPAH). It is quite serious, as it is a disease. It is also rare, 1 in a million people have it. Thankfully, it is treatable with aggressive intervention. We also have time on our side since she is only 4 and still growing. There have also been great developments over the past five years in regards to treatment. We will be here for another two weeks they think. Soon we will be learning our options for medication and possibly making a tough decision. We were told her best option is through a permanent line surgically implanted, which breaks my heart, but once she is better she can lead a normal life. We are pulling the horizon much closer, taking it moment by moment, and learning about what our new normal will be like. Keep my family in your prayers.
Organisator en begunstigde
Kim Taylor
Organisator
Quincy, MA
Richard MacDonald
Begunstigde
