Taking on Ben Nevis 5 times for Huntington’s
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In June 2022 I will be climbing Ben Nevis everyday for 5 days all different routes of the mountain. I have never done anything like this before and it will no doubt be the hardest thing I have ever done in my life; physically and mentally.
In 2015 at the age of just 48 my dad was diagnosed with Huntington’s and since then much of his life has been taken away. During the years where he should have been enjoying his life and embracing new things he has instead had to cope with not being able to do simple tasks many of us take for granted. He can’t work or drive and every day is a struggle – his balance has been affected (so he often falls and injures himself) and he struggles to eat and drink. It is a disease that takes away independence and every day he is slightly worse, for us, his family, this is heart-breaking. However for him it is far worse, he is constantly frustrated that he can no longer do the things he used to love or be the dad he wants to be.
In 2016 I was tested for the inherited gene and was told that I will develop the disease in the future. This was a lot for me to take in at a time where I was caring for my dad and seeing the impact it has on people’s lives. At the time, I struggled to tell people, I was embarrassed and almost felt ashamed, I only confided in those closest to me. The lack of understanding around the disease made this harder and that is why I want to raise awareness of this terrible disease and to raise money in the hope that there will be a cure in my lifetime. I’m taking this opportunity to support the charity while I can. We are so close to a cure so with your help we may be able to get there.
Huntington’s disease is an inherited (genetic) condition that affects the brain and nervous system. Huntington’s attacks brain cells and causes symptoms including mood swings, personality change, memory problems and loss of muscle control. To an onlooker, they may think a person with HD is just drunk as they cannot keep still. Symptoms can start from age 30. At present there is no cure for HD.
With your help I am hoping to make a difference. Any donation, however small, for this amazing cause would be gratefully received. Please follow me on my journey of a lifetime in February 2022!
Thank you
Lucy
xx
In June 2022 I will be climbing Ben Nevis everyday for 5 days all different routes of the mountain. I have never done anything like this before and it will no doubt be the hardest thing I have ever done in my life; physically and mentally.
In 2015 at the age of just 48 my dad was diagnosed with Huntington’s and since then much of his life has been taken away. During the years where he should have been enjoying his life and embracing new things he has instead had to cope with not being able to do simple tasks many of us take for granted. He can’t work or drive and every day is a struggle – his balance has been affected (so he often falls and injures himself) and he struggles to eat and drink. It is a disease that takes away independence and every day he is slightly worse, for us, his family, this is heart-breaking. However for him it is far worse, he is constantly frustrated that he can no longer do the things he used to love or be the dad he wants to be.
In 2016 I was tested for the inherited gene and was told that I will develop the disease in the future. This was a lot for me to take in at a time where I was caring for my dad and seeing the impact it has on people’s lives. At the time, I struggled to tell people, I was embarrassed and almost felt ashamed, I only confided in those closest to me. The lack of understanding around the disease made this harder and that is why I want to raise awareness of this terrible disease and to raise money in the hope that there will be a cure in my lifetime. I’m taking this opportunity to support the charity while I can. We are so close to a cure so with your help we may be able to get there.
Huntington’s disease is an inherited (genetic) condition that affects the brain and nervous system. Huntington’s attacks brain cells and causes symptoms including mood swings, personality change, memory problems and loss of muscle control. To an onlooker, they may think a person with HD is just drunk as they cannot keep still. Symptoms can start from age 30. At present there is no cure for HD.
With your help I am hoping to make a difference. Any donation, however small, for this amazing cause would be gratefully received. Please follow me on my journey of a lifetime in February 2022!
Thank you
Lucy
xx
Organizer
Lucy Wright
Organizer
