This is the beautiful Penelope Allan. She is a gorgeous 4 month old with the cheekiest smile, beautiful bright eyes, and her voice could melt your heart. Penny (as most know her) is however not like other girls her own age.
At eight weeks of age, after being in hospital for weeks, she was diagnosed with SMA1 (Spinal Muscular Atrophy) and her prognosis is heartbreakingly terminal.
Spinal muscular atrophy (SMA) is a genetic condition which affects the nerves that control muscle movement – the motor neurons. Sadly there is no cure for this condition but research for treatment is moving forward. Every childs prognosis of SMA is different depending on the age of onset of the condition. The earlier the symptoms appear, the shorter the expected life-span.
After having time in and out of hospital, Penny has now progressed to Palliative care. Her parents, Frank and Ali, are doing their very best to keep her as comfortable as possible.
There is nothing anyone can do to change this sad reality for this beautiful family (although we would all give our left arm to find a cure). All we can do is continue to support this most beautiful family with love, kindness, thoughts and prayers.
This page is here for anyone that feels they would like to give a monetary gift to help Frank, Ali and Penny at this hard time. The money generated will go towards future care of Penny, funeral costs, hospital donations and SMA research.
The Allans are very grateful for all the love and support from everyone.