Support Vincent and Kalvin's Therapy Journey

Hi, my name is Kristin and these are my sons, Vincent (7) & Kalvin (2).

When Vincent was around 6 months old, we noticed he was behind on meeting milestones. We later learned this was caused by him having low muscle tone due to a rare genetic mutation (RARS2), causing mitochondrial disease. We took his pediatrician’s advice and got him evaluated by Early Intervention. He started receiving weekly therapies through the program around age 1. We loved all of his therapists and he continued to progress until aging out at 3 years old at the height of the Covid pandemic. He was set to start preschool & receive therapies there, but due to schools being closed we ended up getting his therapies through Shriners Hospital Chicago until he started preschool & began receiving therapies in school.

After many tests, including a brain MRI, multiple EEGs & blood tests that all came back “normal”, we’ve been told that all there is to do is continue his therapies.

It was around this time that I came across Kinactive Kids on Instagram and was blown away by the videos they shared of them treating kids through their one of a kind approach of combining physical therapy & chiropractic care. I saw kids making huge progress in just weeks time and knew I wanted to bring Vincent there ASAP.

Leading up to Christmas 2022 I learned that the Walking With Cora Foundation was doing a therapy giveaway. I entered Vincent & in May they surprised us with a life changing call that they were gifting him a 3 week intensive therapy @ Kinactive.

Before attending Kinactive Kamp, Vincent was only able to stay sitting (when placed in the position) for no more than 10 seconds without falling over. Today, because of Kinactive Kamp, he is able to get into sitting on his own and stay there while playing with toys and use his arms to balance and catch himself. I am still in awe watching him do this and witnessing how far he has come.

April 2022, our silly Kalvin was born and we eventually came to notice that he has the condition as well. We got him started in therapies at 10 months. He is now 2 and slowly but surely continues to progress like his brother and shares his relentless determination.

Vince and I would love nothing more than to bring both of our boys back to Kinactive in Texas for a 2 week intensive, but we need your help. Although we both work hard, we are not able to afford it on our own at this time, so if you are able, any amount of help is much appreciated.

Thank you!