Stem cell treatment in the US

Dear kind community,

This is my daughter, Helli. And she’s suffering from severe and progressive autoimmune peripheral neuropathy, muscle atrophy, small fiber neuropathy, collagen loss, hair loss and autonomic nervous system dysfunction caused by a fecal microbiome transplant (FMT).

The FMT was given to her to repopulate the gut microbiome she had lost to strong antibiotic treatment and to relieve the gut issues she had gotten from it.

Her gastroenterologist told her that FMT was very safe, so she trusted him with her life. But it wasn’t safe at all. It was just a game of Russian roulette as no one knows in advance how a recipient will react to a donor’s gut microbiome. It’s just impossible to know. The FMT destroyed her immune system and caused molecular mimicry.

The muscle atrophy is the most dangerous and life-threatening condition she has, and she’s scared to death now. She keeps wasting away and becoming thinner, weaker and more asymmetrical every day. She has difficulties swallowing, breathing and maintaining her balance because the muscles are wasting all over and inside her body. She’s in so much pain, too. And all her 32 teeth have barely any gums left around them anymore.

Simpler put: her immune system is attacking her sensory and motor neurons and tissues.

And no traditional medical treatments have helped so far. She actually got worse from them.

She has now been offered a groundbreaking treatment with cord blood stem cells called ”Stem Cell Educator Therapy” via Throne Biotechnologies in New Jersey to reset her immune system and stop the autoimmunity. And she needs this treatment NOW. She’s declining so fast and cannot wait any longer.

But since she doesn’t meet the alopecia areata criteria of exactly 50% hair loss in their upcoming trial, she cannot get this treatment for free. The medical team still wants to help her since they know her condition's seriousness, but she has to pay for it herself. But she’s been on sick leave due to her condition and cannot afford the treatment at all. Neither can I and my other daughter due to a low income and already existing loans. We have turned over every stone imaginable to fund this (even spoken to banks), but with no luck. And since we live in Sweden and there is no insurance to cover any treatments abroad, we must pay for this ourselves.

GoFundMe is our last resort now. We’re hoping her story reaches as many people as possible so that we can gather the money she needs for this lifesaving treatment.

So if you can make a donation – small, medium or big – we will forever be grateful to you and your generosity. If you cannot donate, please share her story with others who can. GoFundMe is honestly the last resort to save her life.

Thank you so much. You're wonderful.

Please feel free to read about the treatment here:

https://thronebio.com. All of the 20 year long studies and peer-reviewed papers are listed there as well.

Kindest regards

Feri, Helli's mother.