Standing Equipment for Liam

Liam was born a perfectly healthy 6lb 13 oz baby in May of 2001.  He rolled, crawled, sat, grew teeth, & laughed at all the appropriate times.  His benchmarks were exactly where they were supposed to be until he hit 2.  His walking was like watching Captain Jack Sparrow sway around after too much rum, we called him our little drunken pirate.  And he still wasn't doing much talking, mostly grunting and then getting frustrated with us for not understanding his needs as efficiently as he would like.  It wasn't until the age of 4 that Liam was diagnosed with Ataxia Telangiectasia.

Liam is 16 years old now- a junior in high school.  There have been a lot of ups and downs--especially with the extent of flu season this Winter.  His health is tenuous.  Always dependent on what happens with the next sickness.  He has A-T, Primary Immunodeficiency Disease, Reactive Airway Disease, & a G tube to keep him fed.  

With this medical diagnosis muscular endurance is poor, limiting all functional mobility.  He has developed muscular contractures due to his chronic positioning in wheelchairs.  Therefore Liam is in need of an assistive standing device, specifically the Evolv EasyStand. The goals for Liam with standing are to maintain his range of motion, decrease the muscle tone in his hips to allow improved range or motion, maintain bone density to prevent fractures, promote strength to weight bear through his lower extremities to assist caregivers with transfers. Liam’s quality of life would be significantly improved by this stander as he would be placed in an upright position at the eye level of his three teenage siblings. 

Unfortunately, there has been significant difficulty with the insurance authorization process and the device is costly. 
For more information regarding Liam.


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Organizer and beneficiary

Kerry Jacquet 
Twin Lakes, WI
Liam Cowand 
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