Liam is 16 years old now- a junior in high school. There have been a lot of ups and downs--especially with the extent of flu season this Winter. His health is tenuous. Always dependent on what happens with the next sickness. He has A-T, Primary Immunodeficiency Disease, Reactive Airway Disease, & a G tube to keep him fed.
With this medical diagnosis muscular endurance is poor, limiting all functional mobility. He has developed muscular contractures due to his chronic positioning in wheelchairs. Therefore Liam is in need of an assistive standing device, specifically the Evolv EasyStand. The goals for Liam with standing are to maintain his range of motion, decrease the muscle tone in his hips to allow improved range or motion, maintain bone density to prevent fractures, promote strength to weight bear through his lower extremities to assist caregivers with transfers. Liam’s quality of life would be significantly improved by this stander as he would be placed in an upright position at the eye level of his three teenage siblings.
Unfortunately, there has been significant difficulty with the insurance authorization process and the device is costly.
For more information regarding Liam.
- Robert Libby
- Natalie Hendricks
- JANET GABORIK
- Melissa Garst
- Doreen Wells
Organizer and beneficiary
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