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Stand with Nova to fight Pineoblastoma

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Only 4 years ago our world became a little brighter when Nova was gifted to us.She was a very healthy and happy girl. She attended preschool, dance  class , loved being with her friends. She loves mermaids, unicorns, animals, and painting. In August, we took her to a pediatric ophthalmologist when we noticed one of her eyes was going inward, she was withdrawn from school and at home, she was laying around most of the time. We thought she may be having trouble with her vision and experiencing dizziness or vertigo.
The pediatric ophthalmologist informed us our daughter didn't need glasses but needed an MRI. Both of her optic nerves were swollen and this means there is pressure in her brain. We went to the emergency room of Texas Childrens Hospital. That night changed our lives. A CT scan shown she had hydrocephalus due to a mass behind her penial gland in her brain. She was admitted into ICU and the MRI confirmed she had a tumor. 

Our little girl had never had any health problems before so were in shock to hear words like mass, tumor, lesion in our little one. Texas Childrens hospital moved quickly on everything involving her treatment. 
The EVD was installed and a biopsy was done. The biopsy revealed she has a rare aggressive form of cancer, Pineoblastoma. 

She went through surgery to remove the tumor. Our amazing neurosurgeon removed as close to 100% as you can get. She is still recovering. 
She has been a real soldier through this fight and we know God is with her.
Radiation begins in two weeks and will last 6 weeks. Chemotherapy will begin by beginning of 2020 and will continue for 4 months. 
We have a long road ahead and we really don't know what to expect but we remain grateful living one day at a time.
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Donations 

  • Shannon McNamee
    • $50 
    • 4 yrs
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Organizer

Bobbie Baker
Organizer
Pearland, TX

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