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Sophia’s cfs fund

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Thank you for logging onto this page. We are in need of urgent funds to rescue Sophia from a debilitating and disabling condition called a CSF leak which is potentially fixable. On 10th February Sophia had a planned c section as her waters went 7 weeks early, this should of been one of the best days of their lives, after baby was born during theatre Sophia had the worst most painful excruciating crushing head pain. She was screaming in pain & not ONE health professional knew what it was!! When she laid down, the pain went away. It took 7 weeks of calling St Richards hospital in Chichester West Sussex & the midwife to be diagnosed with Intracranial Hypotension & low pressure headache! This is characterised initially by severe head pains which are relieved by lying down. Your brain and spinal cord is surrounded by a bag of fluid called CSF. The bag is called the dura. This supports the brain to float and shock absorbs movement. A hole in the dura means the CSF leaks out leading to a range of horrible symptoms. Here is an explanation: https://www.youtube.com/channel/UCgkVm1RZFuAUvOuK-32M_Nw With research we discovered that the CSF leak is a poorly understood condition and that symptoms change over time. Sophia now has Nausea, severe pain in her whole spine, neck pain, memory loss, lack if concentration, Imbalance, Hearing hypersensitivity, Body Jerks, weakness, tinnitus and a feeling of heaviness and pressure in her head. Due to the effect of the leak she is unable to sit up for more than a few minutes at a time. Imagine not being able to sit up when you want to, because your brain feels like its being crushed. She has endured being stuck lying down, day and night for over 8 months! Each change from lying to sitting is a major challenge and becomes harder through the day. She feels ill and is in pain, and has become distressed and depressed. It's now affecting her heart rate & overall health & every day life. She is soo desperate to be a Mum to her 3 children again & live. Her working life and family roles seem a distant memory. I am asking to raise funds to save Sophia from this torture. These funds will enable us to travel with her lying down in an ambulance to the experts in Freiburg, Germany. They have the specialist knowledge, and expertise to try and locate and fix the CSF leak that Sophia has. We hope she will then be able to return to an upright world and be the Mother, Daughter, Sister, Friend and Partner she was until February. Please will you help us? Her 3 Children are desperate to have their Mummy back. Thank you

Organizer

Lisa Child
Organizer
England

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