Tilly | SMA one day at a time

In May 2019 we were devastated when Tilly was diagnosed with Spinal Muscular Atrophy (SMA) type 2/3 at 18 months old. We were lucky enough that she quickly began treatment, in June. Spinraza is the first-ever approved treatment that targets the underlying genetics of SMA. At 2.5, Tilly is thriving but we've still got a lot of work ahead of us!

Tilly will always need extra support in daily life, a walker, physiotherapy, home adaptations, a school aid, and everything else that comes with SMA. We hope to raise awareness  and to help fundraise for all the life changing adaptations Tilly will need.

Thank you for donating and for your well wishes.