Shu-Min Phung giving back to CJD Support Group

Shu-Min Phung - A wife, mother, daughter, sister and friend was diagnosed with Sporadic CJD on 14 Oct 22. sCJD is a rapidly progressive disease that has no known cause but is believed to be the result of a spontaneous conformational change in the native prion protein.

It occurs at random in about 1 to 2 people per million of the population per year and accounts for 85%–90% of all cases of prion disease. sCJD mainly affects, people in the 50–70 year age group. The length of the illness can vary but sporadic CJD is often recognised for its rapid progression, with survival usually only 3–6 months, however, exceptions do occur in the age of onset, symptoms and the duration of illness.

Mum was always a generous soul, who loved to help and give back to her communities. As such, we thought donating to C J D Support Group Network would be in keeping with mum's spirit. The team from C J D Support Group Network, were instrumental in supporting and providing information to us in looking after mum.

Do you want to join me in making a difference? We are raising money in aid of C J D Support Group Network Pty Ltd and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.

The CJD Support Group Network offers support to all Australians affected by Creutztfeldt-Jakob Disease (CJD) or other prion diseases. The CJDSGN provides information and support to families who are caring for or coming to terms with the loss of a loved one to CJD and assists people who are at increased risk of CJD to receive equity of care when disclosing their at risk of CJD status. CJDSGN supports the prion disease community of Australia.

For more information:

https://www.cjdsupport.org.au