Sharing Our Love for Rylee

This is our beautiful, sweet, soft spoken niece. She is 12 years old.   In July she woke up with a significant change in her cognition and ability to function.  Despite the best efforts of top pediatric specialists in the City of Philadelphia and dozens of scans and tests, no one can figure out what is causing this decline.  In seven months, she has lost most of her ability in the areas of steady ambulation, self care, and communication.  To date, there is still no solid medical or psychological reason for this heart breaking decline.   Rylee has been in Duke University in North Carolina for several weeks undergoing intensive testing and trials of therapies in an effort to stop this debilitating decline.   Her 3 siblings remain here in Pennsylvania being cared for by family, while her parents stay by her side praying desperately for a reason this is happening and a cure.  We are raising money to support our niece and her family in order to help with the medical bills and household finances as her parents needed to step out of their jobs in order to seek answers and a solution.   Please help support this amazing family and child.  Any support  offered, as well as, lots of prayers would be so greatly appreciated.