Join us on Jax's Journey

Meet my daughter Kayte and her husband Matt. And let's not forget Rosie Quinn, their daughter.


May 18, 2018. This will be just another day for some people, but for my daughter and her husband, it is the day they have been looking forward to for the last nine months. It is the day their son,  Jackson Alexander Ray will be born.  Let me tell you a little bit about our boy.

Jax has CDH.  Wait what is CDH?  CDH stands for Congenital Diaphragmatic Hernia and is a life threatening birth defect. . CDH happens when there is a hole in the diaphragm muscle, allowing organs that typically live below the muscle to migrate into the chest cavity, where only the heart and lungs should be. To have a hole on the right side is considered rare and immediately makes his condition critical. His liver and bowel have crept into his chest cavity and have compressed his lungs and heart and have shifted them to the left side of his body. With the liver being the densest organ, it doesn't allow the lungs to develop properly, making them hard.  In a baby without CDH, the lungs become fluid so that blood can pass through easily, making the body function smoothly. When he is born, his heart will attempt to push blood through his lungs, but because they are hardened, his heart may fail.

Jax will be born at CHOP, Children’s Hospital of Philadelphia, which is one of the very best in the country. He already has a team assigned to him so that as soon as he is born, he is on the road to recovery.

I believe in miracles. They happen every day. Jax will be our miracle.