Motor Neurone Disease (MND).
My brother Shane McMahon, who has only recently turned 40, is from Lisanisk in Carrickmacross Co Monaghan. Shane has been a dedicated member of Carrickmacross Emmets GAA Club and Carrickmacross Rovers Soccer Club for many years, both as a player in the past and more recently as a referee. Other members of Shane’s family have also been deeply involved in the local community, volunteering both with Carrickmacross Emmets and other organisations. Shane and Roslyn, his fiancée, together with their young family 2 ½ year old Clarke and the new baby due shortly in January 2018., will need all our support following Shane’s diagnosis with Motor Neurone Disease in October 2017. With all the responsibilities of having a young family Shane and Roslyn must now take up the arduousness of this disease, the least of which will be the journey every 6 week to the Beaumont Hospital. Your help will support them on their way.
For most people the Ice Bucket Challenge was the first time we became aware of Motor Neuron Disease (MND), also known as ALS or Lou Gehrig’s Disease. We all had fun doing the challenge and realised we were raising awareness of MND and also a lot of money for research into it. Despite the popularity of the Ice Bucket Challenge and people’s genuine desire to help and raise awareness most people still know little or nothing about the disease unless it comes close to home.
Currently there is no cure for Motor Neuron Disease despite the money raised by the challenge, however symptoms can be managed to help the person achieve the best possible quality of life. MND is a disease that respects no age barrier and strikes people of all ages, although those over 50 are affected more frequently it can occur in people much younger. At any one time in Ireland there are approximately 350 people living with MND. The cause of MND remains unknown.
Motor Neuron Disease is a progressive neurological condition that attacks the motor neurons, or nerves, in the brain and spinal cord. The effect of this is that the messages sent by the brain gradually stop reaching the muscles. This leads to weakness and wasting of muscles which can affect how you walk, talk, eat, drink and even breathe. People with this disease rely on those around them to support and care for them increasingly as the disease progresses.
This money raised for this fund will be used to support Shane for his future medical care costs; medical equipment costs; and home modification and adaptation costs.