I was diagnosed with Motor Neurone Disease, at just age 32 in February 2019.
To say it was devastating to be told that I would slowly lose the ability to walk, use my arms and hands, speak or swallow and then finally breathe is an understatement!
My Wife (age 28) and I married a mere three years ago, our lives mapped out and now we have a incurable battle to fight, one which we will almost certainly lose.
There is promising treatment, not available within Europe that slows the progression on Motor Neurone Disease. These treatments are available in Australia, Japan and the USA. As you can imagine this medication, which is relatively new is incredibly expensive.
With best intentions, I can't fund accessing this treatment alone - I hate to ask, but can you help me access treatment and give me a few more years with my Wife, Family and Friends...
If I’m unable to reach my target required the fundraising will be used for improving the quality of my life with the disease.
Thank you from every fibre of my being for listening and any donation you can afford...
John Radcliffe Hospital, South East England, United Kingdom