seanscycleforatricycle
Sean Byrne Strava Athlete
Sean Byrne is a 16 year old young man from Skerries and has a passion for cycling.
Sean has a rare genetic disorder, FARS 2 which among many things causes spastic diplegia. Sean has been a full time wheelchair user since the age of 11.
Through Sean’s physio in the Central Remedial Clinic Sean was introduced to cycling using a tricycle aged 9. Sean has always had a love for cycling but it was not until COVID restrictions that he was able to develop his technique and advance onto road cycling.
In November, 2020 Sean reached his 1,000km cycling goal. The physical effort and energy that Sean needs to use, would equate this to 10,000kms of someone who is not physically disabled.
In June, 2021, Sean passed the 2,000km mark. Sean is very dedicated, trains up to 4/5 times per week with his Dad, Barry usually for 1 hr sessions covering 12 to 15kms.
Sean’s current tricycle weighs 26Kgs. Any cyclist will know that this is quite a heavy load to carry with you in normal circumstances.
Swords Cycling Club and Velo Club Balrothery members suggested a fund raising cycle for Sean. It is hoped that with this money Sean can avail of a lightweight carbon tricycle weighing 14kgs. The difference that this would make to Sean’s cycling would allow him to continue to make strides in the sport he loves so much.
The cycling event will take place on Saturday, 4th September, 2021. Starting at Man of War car park at 8.45am and finishing at Man of War car park. It is hoped 200 riders will take part in this event with the option of cycling 50km or 100km.
Registration for this event will open on....entry fee is €25.
We will upload the link to the Cycling Ireland Eventmaster in the coming days
Sean's sister, Ciara aged 11 has the same condition as Sean. Ciara is also a full time wheelchair user.
Any excess funds raised with be managed and used for Sean and Ciara's future.
Your support however big or small would be much appreciated.
Thank you for your time and support with this appeal.
From : Sean's friends and fellow Cyclists.
For Reference:
[FARS2 (Phenylalanyl-TRNA Synthetase 2, Mitochondrial) is a Protein Coding gene. Diseases associated with FARS2 include Combined Oxidative Phosphorylation Deficiency 14 and Spastic Paraplegia 77, Autosomal Recessive. Among its related pathways are Gene Expression and tRNA Aminoacylation.
Its a very rare disorder FARS2 deficiency is rare; the exact prevalence is unknown. To date, 37 affected individuals from 25 families have been reported.
For Reference with respect to all Funds raised through gofundme :
This Fundraising Campaign was set up to support Sean Byrne by embers of the "Saturday Morning Training Group" that meet at every Saturday morning
Members of the group namely : Paul Dean, Pat Halpin, Gary Mellows, Robbie Staunton, Steve Hurrell and others decided to run a small Group spin to raise funds for Sean Byrne to assist to with the purchase of a lighter tricycle for Sean Byrne who was a well known figure cycling his tricycle around Skerries in North County Dublin. Thanks to all of the Saturday Morning Training Group for their ongoing support, photos and Strava comments that have made this journey and fundraising possible
All of Sean Byrnes training on his current 29 kgs Tricycle can be found on his Strava Profile
https://www.strava.com/athletes/53821519
All of the group are from the Skerries, Balrothery, Balbriggan area of North County Dublin, all are cyclists and training partners along with knowing the family and father of Sean Byrne. Sean's father Barry is a regular cyclist and training partner and member of the "Saturday Morning Training Group".
The Funds raised will be used to purchase a specialist racing tricycle for Sean Byrne. Currently design of this tricycle is being undertaken by Nevi Titanium Bikes Via Passerera 2C/1, Chiuduno, Bergamo, Italia.
All fund raised will go to the purchase of this specialized titanium tricycle and ongoing expenses for both Sean and his sister Ciara who also has the same condition
Finally the monies will be with drawn to a nominated Account in the Permanent TSB Balbriggan. This account has two signatories and will be overseen to support Sean Byrne and Ciara Byrne in the athletic and scholastic endeavors in the coming years.
