Scarlett Sepe was diagnosed with Spinal Muscular Atrophy on December 14, 2011 at the age of 8 months. SMA is a degenerative, motor neuron condition affecting all voluntary muscles in a person's body. SMA is the number one genetic killer of children and has no treatment or cure. But, with proper care from a team of doctors and therapists, Scarlett has the chance to live a long and happy life. You can read more about Scarlett's journey with SMA at www.wishesforscarlett.com
Scarlett cannot move by herself and requires assistance for every activity in her day. She has never crawled, pulled up, stood independently, or walked. Scarlett does have limited use of her arms and an incredible, creative mind. She is smart, loving, funny, and such a joy to be with.
Scarlett recently outgrew her first wheelchair and we are in the process of purchasing a new manual chair. This chair also needs a custom seat and back to assist Scarlett with her scoliosis and pelvic obliquity. We have had several fundraisers and are close to our goal of giving Scarlett a new chair perfect for her body. We estimate that we have $1,500 left to raise.
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To continue to read Scarlett's story, "like" her Facebook page at https://www.facebook.com/pages/Wishes-for-Scarlett/182231591882337?fref=ts