Savannah Faith's ~ MPS1 Battle Fund

Savannah has MPS1 also known as Hurler Syndrome, but has been blessed that her second transplant worked where she is now in the process of moving forward in her care. She now receives continued medical care with routine visits to Texas Children's Hospital (2.5 hour drive one way), weekly (sometimes 2-3 times a week) therapy that includes physical, speech, and occupational therapy, as well as her specialists for the other ailments that MPS1 causes on the body. The special areas she will need continued care in are cardiology, ophthalmology, ENT, and orthopedics. This fund is to help us travel to each appointment, pay for medical and provide medicine and other needs for her as they come along ~ Thank you all for helping us out!