She was recently diagnosed with Chronic Toxic Encephalopathy, Systemic Inflammatory Response Syndrome (SIRS) because of a prolonged toxic mold exposure, and soft lesions on her brain from an acute traumatic brain injury. She is constantly fighting sepsis . Her body is so toxic that even the smallest of dangers go directly to her brain. When that happens, her muscles contract which makes her hands, arms and legs twist painfully. Then she stops breathing.
She is so sensitive to mold that it's like a severe peanut allergy. 90% of the buildings in the area of traces of mold in their air conditioning systems. Over the past year she's lost count of how many times she's stopped breathing (grocery store, church, DMV, post office, lab to get a blood draw, imaging facility, and work. Over Labor Day weekend her toxicity got so bad that she had difficulty breathing in the car after getting take-out tacos.
Her symptoms come and go depending on what's in the air, food and how much energy she uses.
She's working hard to follow doctor's orders. In many ways she's made lots of progress. They finally know what's wrong and how to help her, but financially the hospital says, ER visits, blood work and medication to get her to this point have drained family finances. It’s impossible to continue treatment.
• Medications to bind to the mold toxins, specialized antibacterial and antifungal nasal spray to reduce the toxic load. Each medicine much be obtained through a compounding pharmacy so that it doesn't have ingredients that trigger the toxic encephalopathy). ($286-414/monthly)
• Weekly IV therapy & injections to heal the blood-brain-barrier. ($80 monthly)
• Supplements to heal the gut lining and address toxic encephalopathy (aprox $140/month)
• Specialized diet ($125/month)
• Monthly changing of Air filters for both the HVAC and HEPA purifiers in the house ($120/month)
• Copays and patient responsibility for lab work and doctor appointments ($220 monthly + 20% of blood work costs)
• Infrared sauna (Online home options ranges anywhere from $180-1500)
• Staying in a temperature-controlled environment with air filtration so as not to expend too much energy ($365/month while using medical equipment 24/7).
She and her sweetheart have worked hard to stay afloat during what must feel like an unending barrage of new developments. She lost her full-time job due to deteriorating health.
She's forever grateful family and the Church’s humanitarian program for all the ongoing support in so many ways we cannot adequately express our gratitude. She's embarrassed to request more help, she cannot continue medical treatment without assistance. All funds raised here will go directly to Sarah and David and will cover three months of medical treatment.
She longs for the day when she can enter any building without becoming paralysed and stop breathing. She wants return to inspiring mental health professionals and people with mental illness in the recovery journey.
Can you help her get her wish?
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- Diane Botterill
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