With shattered hearts, we share the devastating news that our beautiful boy died at home yesterday afternoon. He fought right until the end and we are incredibly proud of him and utterly heartbroken to be facing the world without his smile to brighten our days.
Our little warrior, Gorgeous George. The brightest star in the sky
30/01/2013 - 22/08/2019
Thank you to all the donors so far ❤️ We've smashed the target! Let's keep it going! ❤️
George is 6 years old and has been battling leukaemia since he was just 22 months old. After years of chemotherapy, a bone marrow transplant, and pioneering CAR T cell therapy, relapsing and achieving remission 3 times, George’s parents have just received the devastating news that the cancer has returned, and the only option now is a drug to hold it back long enough to give him time to enjoy things like school, holidays/trips and precious time with his family, as George cannot be cured.
This is every parents worst nightmare, and although there is nothing we can do to help George get better, I feel like we can help the family to make the most of the time they have left with him.
Anything you donate will go directly to George’s parents (Amy & Craig) and this can be used by them towards family days out, trips, holidays, experiences etc, sometimes even just to ease the financial pressure which will obviously take its toll with things of this nature. *** at the time of writing this, George and little sister Bella are unaware of George’s relapse, if you see the family please do not mention it in front of them ***
For latest updates please follow Gorgeous George and Leukaemia on Facebook.
Below is a summary of George’s journey if you are not familiar with his story.
George was first diagnosed with acute lymphoblastic leukaemia in late 2014, aged just 22 months. He went through nine months of intensive chemotherapy and began maintenance chemotherapy every day at home. He eventually went into remission.
Sadly in October 2016 doctors confirmed he had relapsed and the leukaemia had returned. It had also spread to his spinal fluid and right kidney. George then had to endure more high-dose chemotherapy and required continued chemotherapy, total body radiotherapy and a bone marrow transplant at Bristol Children’s Hospital, which took place in April 2017, and George achieved remission once again.
But devastatingly in March 2018 he relapsed, 317 days post transplant.
Thankfully George’s doctors at Southampton and Bristol managed to get him to the top of the list for a trial of a new type of therapy called CAR T Cell therapy at Great Ormond Street, which involved taking some of George’s blood and altering his T cells to make them fight his type of Leukaemia. In June 2018 the CAR T cell therapy began, and in July George went into remission for the third time.
From then monthly visits to GOSH were needed to ensure he was still in remission. Month after month there was an agonising week-long wait for the biopsy results. But good results kept coming and coming, and at the start of April George even got the fantastic news from his consultant that he would be able to start school, something he’s wanted for so long..
However the following week the crushing news arrived that his latest biopsy showed he was no longer remission. Now George can not be cured. The only option is a drug to hold back his cancer long enough to allow him some precious time with his family.
George has been through so much during his short life, more than most will ever go through in their wholes lives.. Chemotherapy, radiotherapy, blood transfusions, bone marrow transplant, X-rays, CT scans, MRI scans, IV’s, Central lines, PICC lines, lumbar punctures, biopsies, Christmas after Christmas in hospital.. the list goes on.
But what’s important to focus on now is the time that George does have left, and how we can help the family make the most of these precious moments.
Thank you for reading.