My husband, Ryan (ROC), was diagnosed with Epilepsy as an adult in about 2011. He has been through everything and back to put an end to his seizures. I knew Ryan when he was diagnosed but did not start dating him or get married to him until several years after his diagnosis. After we got married, we learned so much more about how Epilepsy can impact a person’s life. Every day our marriage only gets stronger as we deal with seizures, medication side effects, loss of Ryan’s driving privileges, searching for a possible cure, medical expenses, and having to explain to our toddler why we can’t go certain places or why daddy is sick. We continue to fight Ryan’s epilepsy as a family.
Every time Ryan has a seizure, it causes him at least a day out of work. Sometimes, he has myclonic jerks indicating a major seizure on the way so he takes a rescue medication to hold off the seizure. However the rescue medication makes him so sleepy that if he has to take it in the morning or middle of a workday, there is more time off of work.
Consequently, Ryan is out of paid time off and losing pay each time he is out of work. My salary on its own is not enough to pay all of our family’s bills and expenses. Money raised is used for:
Medical bills - still determining full amount as Ryan has needed ongoing ER visits and hospitalizations
Medication - $260/month
Housing and utilities - $1500/month
Food and supplements - $400/month
Transportation - $50/month
Lost wages - $1000 and still counting
I am reaching out on behalf of Ryan and our family to ask for your help. Not just help with our immediate needs for day to day expenses but for help with ongoing expenses that could lead to a cure and to allow us to pay it forward to others in the same situation.