Help Little Mason and Family

Mason was born 12/22/17, 6 weeks early. He had been diagnosed with VACTERL. VACTERL is a series of anomalies the make up VACTERL (V-Vertebral, Anal, Cardiac, Tracheo-esophageal fistula "TEF", Renal/Kidney and Limbs) Mason was born with a butterfly vertebrae; which can cause scoliosis which is followed up at 6 months of age. He also has TEF which is a disconnect from the esophagus to his stomach which was repaired at 36 hours of age. TEF babies can have severe cases of reflux which in Masons case is pretty severe but holding off on doing any type of stomach wrap. He is on Prilosec to control the burning feeling of reflux he does have. He is currently followed by the cardiologist team because he keeps having "SVT" which is a spike in his heart. He is on a medication which is a beta blocker to keep his heart from spiking. Mason will be having a g tube placed Tuesday along with a scope to check his airway. In Masons case his lower airway is floppy because the development of his TEF; which is called bronchomalacia. Most recently, Mason has had episodes whenever he is bottle fed his airway is collapsing from the bronchomalacia which is why the feeding tube is placed.

With the g tube placed and having positive pressure support (oxygen tank being sent home) to keep his air way stented open; along with sickness in daycare. It is recommended by Mason's team of doctors that Mason stay out of daycare the first year and a half of his life or longer. If Mason is in daycare his risk of infection is much higher then an average baby and would end up being hospitalized weekly, also we would need a specialized daycare provider for his g tube. As of Monday, I am going out on FMLA which is 60% of my income followed by maternity leave. That will get us to the end of May or beginning of March if saying Mason is getting out the end of March.

With Josh's income we would barely be able to cover the costs of living alone not to mention a child would special medical needs and hospital bills. Our goal is to use anything toward our living just so I can stay home with Mason to be his caretaker at all times. Also with Mason he will be followed by his liver, heart, esophagus, and spine the first year of his life almost weekly.