Remembering Rylan

Rylan entered this world on August 11, 2017 and was diagnosed with Junctional EB with Pyloric Atresia. He had the most rare and most fatal kind of EB anyone could get. He fought every day with the daily wound changes and bleach baths. He battled 2 MRSA infections and pneumonia. As each week went by his little body was slowly losing his battle against this disease. The blisters got so bad internally it eventually took his life on September 22, 2017. We are struggling financially paying for his funeral due to me being on maternity leave for 6 weeks. Any help would be greatly appreciated. I want to make his rememberance amazing and spread awareness of EB and how it effects individuals. Fly high baby boy
8/11/17-9/22/17