Ream Family Medical Fund
Three years ago our youngest son Evan began a difficult journey with his health that we have been fighting to figure out and help him. Two months ago, after years and dozens of doctors appointments we received the official diagnosis of Kearnes-Sayre Syndrome. There is no cure for this rare mitochondria condition and the long list of scary symptoms (only some of which Evan is currently experiencing) is something we never expected to face. We have mounting medical expenses that neither Evan’s insurance nor our family sharing plan has approved to cover. The majority of the specialists and supplements Evan truly needs are out of pocket expenses that we no longer have the option to continue without asking for help.
Our oldest daughter also has some hard to manage diagnosis’s and was admitted to a special program in Virginia that can help us but due to COVID closings, she has been unable to begin and we have had to find new specialists in Texas. Our hospital social worker assigned to our case has advised us to seek long term disability for these two of our four children and that is a long process. Our American family has lived and served full time in the country of Haiti since 2011. Due to certain conditions in Haiti that the doctors believe could have triggered and caused progression in Evan’s body, we are facing the reality that we most likely will not be able return to our Haiti home in a full time capacity where our jobs, church family, friends, and pets are waiting for us to come back. We have been grieving and processing this news for a few months now while quarantining and navigating the impact of COVID which has also prevented us from being able to return to Haiti as planned this summer. We are sharing this sad news publicly to ask for your prayers and support as we continue to fight for and alongside our kids. This fight was certainly not part of our plans but we are trusting that God’s plans are always better and He has always been faithful to see us through.
If you would like to learn more about Evan’s diagnosis here is a link for that.
https://rarediseases.org/rare-diseases/kearns-sayre-syndrome/
