Battle Of Brain/Spinal Cord Virus
Donation protected
I'm going to start by saying thank you for taking the time to read my story and possibly giving me a chance at a better life in health.
You do not have to read this all. My simple story is that I have always been active and adventurous. Most consider me a positive and conscientious person. However, even experienced hikers can get bitten. I was bitten by 4 Lyme Ticks. I contracted Lymes 2 as well as 3 other infections that are more so life threatening at this time. I do not wish to say what they are at this time.
I did not know I was bitten by a tick at the time as they did not burrow, to my knowledge. The doctors I am currently working with are the best in their field. I am finally in good hands with a privately funded clinic as insurance and government do not cover the cost to treat what I have.
My situation in easy terms is that I now suffer from an acute virus of the brain, cerebral fluid and spinal cord which affect my memory and motor skills. I do not get enough oxygen to my brain.
I have been having degenerative issues that I was Unaware of for a long time though thankful my body had been good to me fighting against all the way until past few month and now it has gotten extremely debilitating.
Please help me to recover my life to get treatments. If I do not the infection could take over and cause heart attack or stroke or worse. I have 4 months of short term treatment to get out of danger zone and this is the cost I am asking to cover. After that I will be treating on going chronic issues of Lymes disease for a few years or so. Right now I do receive oxygen but I need to make sure I continue treatment to full term. Thank you.
The long story and updates are below:
For two months I have experienced minor to severe physical symptoms very swiftly. I have already put out all the financial backing I had which amounted to about 16k so far plus some more from close family, thank you mom and dad!
I am not asking for this to be paid.
I have seen over 10 professionals and 3 specialists to help determine my prognosis.
With much minor to extreme trial and error. This has included blood, organ, urine and spinal fluid testing as well as CT scans, MRIs, EEGs.
9-14-17 Finally! after everything, the past few months- I am finally diagnosed with a spinal cord and brain virus. This is contained and not contagious whatsoever.
To put it simply, I have inflammation of the brain and spinal cord.
This is due to an autoimmune attack on the nervous system, meaning that the immune system mistakenly attacks body tissue that it believes to be a virus. However, I have both This autoimmune attack and an actual virus. This virus and growth suppress oxygen flow to my brain. Needless to say my body is very confused. I got this virus due to tick bite. Doing my favorite thing in the world... hiking.
I have scare tissue on the cerebellum (base of the brain) The cerebellum is located under the cerebrum. Its function is to coordinate muscle movements, maintain posture, and balance.
Treatment for 4 months is $21,600 in a medical retreat. However I have decided to take the cheaper route at home which is $8,100. I am also to be receiving Cranial adjusting and lymphatic drainage every 10 days. Bandages for treatment alone is $720.
If I do not receive this treatment my memory and motor skills and whole nervous system will continue to degrade.
I don’t like asking for help, but Treatment is the only option I have to pull through this.
This inflammation can produce a wide range of symptoms, including fever, headache, seizures, change in behavior or confusion and, in extreme cases, can cause brain damage, stroke, or even death.
Time is getting shorter and conditions are persisting and my pride is dropping along with my energy. Sometimes I have my good moments in a day of happy energy and other at random, I collapse. Anything that anyone can provide would be very much appreciated. Thank you and bless all your hearts!
For Canadian donations via etransfer can be sent to [email redacted]
Written 9-12-17:
I have a happy life, blessed with amazing supportive friends and family. I always have high energy and positivity to share.
However, I have been experiencing major physical setbacks to maintain my productive and positive life.
Over a month ago, I experienced the most painful head ache of my life, it put me on my back a couple of hours before getting courage to go to hospital. At the clinic I didn't want to pay the high price to be seen and thought I just needed sleep and I will be ok. Looking back at it now, I wasn't in any position to make that judgment call. I slept for 16.5 hours that night! Off one baby Tylenol! I took to ease the pain. I don't take anything in my life ever to "ease pain."
I am not a believer in drugs or over the counter medication or taking pain pills to relieve anything. I have had surgery in the past and did not take any pain pills. I have a high tolerance for pain. However this headache felt like a thunderbolt straight to the middle of my head.
Prideful me ignored the emergency at the time regretfully.
Recently, I started experiencing minor medical issues, which have started to become more serious. My symptoms have included lack of energy, difficulty breathing, fainting spells, fevers, and severe headaches. This had also affected my ability to remain composed this has included snapping and having to control random fit of frustration. Some of these physical symptoms are now occurring every day. I have spent over $2,000 to see several doctors already as my insurance ran out a couple months ago. Ironically before this incident. They originally called it a cluster headache and mentioned it should go away. That hasn't been the case. It's here everyday and growing stronger. I drop things and can barely keep my energy in daily activities. I get winded but my lungs are completely fine and have been check. I had battled with canceratic scaring of the liver in my past, so I thought, maybe, it was back. Thankfully I got tested and am cancer free! Whoohoo. I thought it was all just crazy that these things are happening. That if it's not the worst then I will be ok.
I have seen 8 different professionals and been through lots of testing.
The root cause has not been found, and the search to find it is ongoing.
One doctor found that my pupils were not responding properly, and observed some inflammation behind my eye. Another doctor found and inflammation in the back of my neck just under my head. I am committed to doing everything possible to find out what is causing this and resolving it.
Four separate doctors have recommended that I receive an MRI immediately to discover any problems that have not been detected. And now I can no longer fly back home to my family with out getting neurological doctors ok. So again I need an MRI, However I delayed this due to finances. I have to get a brain and sinus MRI and possibly a neck one as well. This will cost another $3,000, and I have to find and pay (no clue how much) for neurologist determine outcome for me, I may need further treatment after that. I am already on a wait list for a few testing and treatments at a clinic for these unknown anomalies too. Please read updates.
I don’t like asking for help, but I know that I have many wonderful friends and family who I love dearly.
Time is getting shorter and conditions are persisting and my pride is dropping along with my energy. Sometimes, I have my good moments in a day of happy energy and other at random, I collapse. Anything that anyone can provide would be very much appreciated. Thank you and bless all your hearts!
For Canadian donations via etransfer can be sent to [email redacted]
You do not have to read this all. My simple story is that I have always been active and adventurous. Most consider me a positive and conscientious person. However, even experienced hikers can get bitten. I was bitten by 4 Lyme Ticks. I contracted Lymes 2 as well as 3 other infections that are more so life threatening at this time. I do not wish to say what they are at this time.
I did not know I was bitten by a tick at the time as they did not burrow, to my knowledge. The doctors I am currently working with are the best in their field. I am finally in good hands with a privately funded clinic as insurance and government do not cover the cost to treat what I have.
My situation in easy terms is that I now suffer from an acute virus of the brain, cerebral fluid and spinal cord which affect my memory and motor skills. I do not get enough oxygen to my brain.
I have been having degenerative issues that I was Unaware of for a long time though thankful my body had been good to me fighting against all the way until past few month and now it has gotten extremely debilitating.
Please help me to recover my life to get treatments. If I do not the infection could take over and cause heart attack or stroke or worse. I have 4 months of short term treatment to get out of danger zone and this is the cost I am asking to cover. After that I will be treating on going chronic issues of Lymes disease for a few years or so. Right now I do receive oxygen but I need to make sure I continue treatment to full term. Thank you.
The long story and updates are below:
For two months I have experienced minor to severe physical symptoms very swiftly. I have already put out all the financial backing I had which amounted to about 16k so far plus some more from close family, thank you mom and dad!
I am not asking for this to be paid.
I have seen over 10 professionals and 3 specialists to help determine my prognosis.
With much minor to extreme trial and error. This has included blood, organ, urine and spinal fluid testing as well as CT scans, MRIs, EEGs.
9-14-17 Finally! after everything, the past few months- I am finally diagnosed with a spinal cord and brain virus. This is contained and not contagious whatsoever.
To put it simply, I have inflammation of the brain and spinal cord.
This is due to an autoimmune attack on the nervous system, meaning that the immune system mistakenly attacks body tissue that it believes to be a virus. However, I have both This autoimmune attack and an actual virus. This virus and growth suppress oxygen flow to my brain. Needless to say my body is very confused. I got this virus due to tick bite. Doing my favorite thing in the world... hiking.
I have scare tissue on the cerebellum (base of the brain) The cerebellum is located under the cerebrum. Its function is to coordinate muscle movements, maintain posture, and balance.
Treatment for 4 months is $21,600 in a medical retreat. However I have decided to take the cheaper route at home which is $8,100. I am also to be receiving Cranial adjusting and lymphatic drainage every 10 days. Bandages for treatment alone is $720.
If I do not receive this treatment my memory and motor skills and whole nervous system will continue to degrade.
I don’t like asking for help, but Treatment is the only option I have to pull through this.
This inflammation can produce a wide range of symptoms, including fever, headache, seizures, change in behavior or confusion and, in extreme cases, can cause brain damage, stroke, or even death.
Time is getting shorter and conditions are persisting and my pride is dropping along with my energy. Sometimes I have my good moments in a day of happy energy and other at random, I collapse. Anything that anyone can provide would be very much appreciated. Thank you and bless all your hearts!
For Canadian donations via etransfer can be sent to [email redacted]
Written 9-12-17:
I have a happy life, blessed with amazing supportive friends and family. I always have high energy and positivity to share.
However, I have been experiencing major physical setbacks to maintain my productive and positive life.
Over a month ago, I experienced the most painful head ache of my life, it put me on my back a couple of hours before getting courage to go to hospital. At the clinic I didn't want to pay the high price to be seen and thought I just needed sleep and I will be ok. Looking back at it now, I wasn't in any position to make that judgment call. I slept for 16.5 hours that night! Off one baby Tylenol! I took to ease the pain. I don't take anything in my life ever to "ease pain."
I am not a believer in drugs or over the counter medication or taking pain pills to relieve anything. I have had surgery in the past and did not take any pain pills. I have a high tolerance for pain. However this headache felt like a thunderbolt straight to the middle of my head.
Prideful me ignored the emergency at the time regretfully.
Recently, I started experiencing minor medical issues, which have started to become more serious. My symptoms have included lack of energy, difficulty breathing, fainting spells, fevers, and severe headaches. This had also affected my ability to remain composed this has included snapping and having to control random fit of frustration. Some of these physical symptoms are now occurring every day. I have spent over $2,000 to see several doctors already as my insurance ran out a couple months ago. Ironically before this incident. They originally called it a cluster headache and mentioned it should go away. That hasn't been the case. It's here everyday and growing stronger. I drop things and can barely keep my energy in daily activities. I get winded but my lungs are completely fine and have been check. I had battled with canceratic scaring of the liver in my past, so I thought, maybe, it was back. Thankfully I got tested and am cancer free! Whoohoo. I thought it was all just crazy that these things are happening. That if it's not the worst then I will be ok.
I have seen 8 different professionals and been through lots of testing.
The root cause has not been found, and the search to find it is ongoing.
One doctor found that my pupils were not responding properly, and observed some inflammation behind my eye. Another doctor found and inflammation in the back of my neck just under my head. I am committed to doing everything possible to find out what is causing this and resolving it.
Four separate doctors have recommended that I receive an MRI immediately to discover any problems that have not been detected. And now I can no longer fly back home to my family with out getting neurological doctors ok. So again I need an MRI, However I delayed this due to finances. I have to get a brain and sinus MRI and possibly a neck one as well. This will cost another $3,000, and I have to find and pay (no clue how much) for neurologist determine outcome for me, I may need further treatment after that. I am already on a wait list for a few testing and treatments at a clinic for these unknown anomalies too. Please read updates.
I don’t like asking for help, but I know that I have many wonderful friends and family who I love dearly.
Time is getting shorter and conditions are persisting and my pride is dropping along with my energy. Sometimes, I have my good moments in a day of happy energy and other at random, I collapse. Anything that anyone can provide would be very much appreciated. Thank you and bless all your hearts!
For Canadian donations via etransfer can be sent to [email redacted]
Organizer
Rachelle Lin
Organizer
San Jose, CA
