He has had multiple spine and brain surgeries in his sort life , his brain surgeries have left him profoundly deaf , his spine surgeries have had a huge impact on his mobility !
His last scans have shown a big spine tumour on his spinal cues that is slowly paralysing him from the neck down , conventional methods have all been exhausted and the neurosurgeons say that the only thing they can offer is surgery to remove the tumour which carries a 50/50 risk of permanent complete paralysis from the neck down .
We are now working with alternate medications and unconventional methods , all of which are already having a positive impact on him , he has slight improvement in mobility in just a week which is amazing to say the least . None of these treatments are funded by the NHS and due to the severity of his condition he requires full time care provided by me his mum. These treatments are expensive but having done extensive research into these therapies and treatments , the evidence speaks for itself . I am setting up this page to appeal for help in funding these treatments as I believe this is the only way to save him from permanent complete paralysis.
Jack is a truly inspiring young man , throughout his surgeries , he’s had 9 procedures this year already, he remains positive , he keeps smiling and never fails to amaze me with his attitude , he really is a remarkable young man and is more thanI deserving of this last chance ! In jacks short life , he is only 19 , he has had over ten brain surgeries , 3 major spinal surgeries , a gruelling two and a half years of chemotherapy , has become profoundly deaf since the age of 15 due to vestibular schwannomas that destroyed his hearing and balance nerves on both sides , he has missed out on the normality of life due to regular hospital stays and long periods of recovery , he is in constant pain , but throughout all the challenges that he faces he still remains cheerful and positive !
Please take the time to share Jacks story and help to raise awareness of Neurofibromatosis, thank you
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