Please help medical treatment

Hello all My name is Theo. I am 4 months old. My mummy and daddy and family are asking if anyone can help me with some private tests. They are currently looking into a bone disorder possible osteogenesis imperfecta. On the 28th of June my doggy landed on my arm accidentally to which my arm hurt. Mummy and daddy rushed me to hospital and found that I have had multiple fractures from possible birthing to now. I have a bowed leg and I have something that looks like sclera ( blueing of the eyes) I have a very low parathyroid hormone and I have muscle weakness to which I have been referred to physio as I can’t hold my head up or straighten my back. I also can’t seem to put any weight on to which is a worry. Due to being told by consultant’s that my physical appearance doesn’t fit the criteria of OI (osteogenesis imperfecta) they have decided that NHS wont fund my genetic tests. Due to this I could be suffering as I am on constant pain relief. My family who adore me have decided to see if a go fund me page can help raise anything to help my family get the treatment I need privately. My family are in bits and we need some clarification. I’m so sad that because I don’t look Typical OI that it means I can’t have the tests even though I have nearly all the symptoms. Presently I am so delicate that I am not able to be with my brother incase my brother kisses and cuddles me which could accidently hurts me Thankyou to everyone for all your support and love. xx