This is my partner Janni, who has been diagnosed with Primary Mediastinal B-Cell Lymphoma at the age of 28.
A little about Janni:
• Janni is a warm hearted and loving person, who cares deeply about her loved ones.
Her outgoing personality, full of life and bubbly demeanour make it difficult not to enjoy her company.
Janni also has a soft spot for animals, and tries her best to minimize plastic waste to save the ocean life especially her beloved turtles! She has two dogs of her own back home in Finland Luumu (Plum) and Vohveli (Waffles) which she hopes to bring to Canada in the near future. Hobbies/Interests
• Janni loves to play guitar, Swimming, going to the movies, enjoys listening to top POP hits and travelling. Support System:
• Her family & friends are all in Finland (Mom, Dad, Sister, Brother, grandparents, aunts, uncles and cousins)
• My circle of friends, family, and myself have been very supportive as wellGoals
• Shes looking to enroll in a bridging program to obtain her Canadian degree in Optometry.
• Marriage for us, and kids in the future.
• Obtaining PR in Canada - She has her Permanent Residence application currently in process with Immigration CanadaWhen everything started happening…
Everything came out of nowhere, and happened so quickly. She had no previous medical history or symptoms besides a cough, a small rash on her foot, and itchy skin every so often which wouldn’t lead you to believe that it may be cancer. Then the final sign was when one evening we were just relaxing at home watching TV, she all of a sudden started feeling a little tingle in her right arm and when she looked, it was all swelled up so we to a walk-in clinic (Which she had to pay for the visit no OHIP at the time)
Doctor took a look at her arm and diagnosed it as an allergic reaction to a possible insect bite, so he gave her allergy meds and sent her home. The next day the swelling was worse, so we went to another urgent care clinic (again paid out of pocket for visit and ultrasound) where they did an ultrasound, and found a blood clot in her arm going from her elbow up to her shoulder area that lead to a diagnosis of unprovoked DVT (Deep Vein Thrombosis). The doctor prescribed her Eliquis (blood thinners) and told her the hospital will give her a call in a few weeks to schedule a follow up appointment.
She started the prescribed medication immediately and in only 96 hours, the swelling moved from her arm to her neck and face making it difficult to breathe and move around.
I took her to the Emergency triage at Stevenson Memorial Hospital in Alliston. A CT scan of her chest was taken and that’s when the doctor discovered a huge mass that was pressing on her heart, lung, and a main artery hence the swelling.
The doctor then transferred her from Stevenson Memorial Hospital downtown to where she was admitted at Toronto General for 10 days. A multitude of tests including a biopsy on the mass were performed. After a few days, the results of the biopsy had finally come in with results of Lymphoma. At this point the medical team was not sure about the type of Lymphoma therefore treatment could not commence...
Once they received more detailed results of the biopsy, it was presumed she has stage one Primary Mediastinal B-Cell Lymphoma, which is a rare type, made to represent only 2% of all Lymphoma diagnosis
Once diagnosis was confirmed, she was then transferred Princess Margret where she began chemotherapy immediately.
Janni will be doing out-patient treatment every 3 weeks at Princess Margret Cancer Centre in downtown Toronto as well as follow-up appointments and tests.
Due to Janni not being able to drive because of the medications she is taking, I have to take time off work in order to drive her to her appointments (approx. 100km 1 way from home)
She has already missed 12 weeks of work and is ongoing due to the condition.
After treatment is completed, we are hoping to return to Finland to visit Janni’s family mainly her grandparents who are elderly and unable to travel. Janni has not seen her family since her diagnosis except for her mom who came for a couple weeks at the start of her first treatmentSome Medical details:
Diagnosis: Primary Mediastinal B-Cell Lymphoma
Treatment: Chemotherapy protocol = 6 sessions of RCHOP
R = Rituximab
C = Cyclophosphamide,
H = Doxorubicin Hydrochloride (Hydroxydaunomycin)
O = Vincristine Sulfate (Oncovin)
P = Prednisone
Radiation will be required after chemo if PET scan results come back showing continued active cancer.
Frequency: Every 3 weeks
Start date: June 18, 2019
The Wig: A wig fabricated from real human hair, was purchased at Gabi’s Wigs on Bathurst Street in Toronto (paid out of pocket) albeit priceless to a beautiful 28 year old woman who is feeling down on herself.
We want our vibrant Janni back but in this battle, we could use a little bit of help.