Help baby Kennedy w/medical needs

My granddaughter was born 5-24-17. She was born with a condition called "Pierre Robin Sequence."  Basically what that means, is that her lower jaw/chin did not fully develop.  This in turn pushed her normal sized tongue to the top of her mouth.
She developed a cleft pallet, which is a hole in the top of her mouth (inside). This doesnt allow her to breath on her back and she can only be on her belly. She currently has a feeding tube to let her eat.

She is at The NICU at Winnie Palmer in Orlando and will be there for another 2 months.

Once she turns a year old, they are going to be doing surgery on the hole in her mouth and putting tubes in her ears to help with the ear infections she'll be having.
Lastly, she is going to need speech therapy shortly after her 1 year old surgery.

In about 3 weeks she is going to either be getting a breathing​ tube in her throat or a surgery to pull her jaw out.
My son Cody and his wife Kyrsten's insurance is not going to cover all of the expenses for Kennedy.  Any amount at all will help their unexpected costs, medical costs, and future costs as well.  

This is going to be a long road ahead for Kennedy and also for Cody and Kyrsten. Please share this on your Facebook and Twitter accounts.



  • Ashley Thomas
    • $25 
    • 7 yrs


Noelle Dunn
Deltona, FL

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