Ahslynn and Ian (1 1/2 years old) have a rare genetic disorder. At this time they have no insurance and can get no insurance. Ashlynn is a first responder. She has dedicated her life to helping others.
She has a new job, but must wait 90 days to be covered by her employer. Until then she has medical expenses that are necessary to stay alive. I will let her tell you the rest in her own words:
"Ian is a year and a half old. I have Vascular Ehlers Danlos Syndrome and there is no cure. A few of the comorbidities include:
Chronic liver failure
Organ rupture and much more
Vascular Ehlers Danlos Syndrome is a connective tissue disorder. It causes my joints to dislocate on a daily basis which is extremely painful.
Severe cardiovascular issues, organ rupture, skin tearing and surgical complications.
I have a Hickman (IV central line) in my chest. I have to do fluid infusions daily to avoid passing out. I am on many medications both IV and by mouth.
Every single day is a fight.
I currently do not have insurance and I am forced to self pay.
Doctors visits range from $150-300 per visit. Last month alone, I spent $1350 at the pharmacy for medications that I will die without. That does not include line supplies including dressing change kits, tegaderms, syringes, needles, saline and heparin flushes, or curos."
We are trying to raise enough money to cover her known and emergency health care costs until her insurance becomes available. We have conservatively calculated that those expected and unexpected costs could amount to around $7,700 based on prior experience.
We are creating this as part of the outreach/inreach program at St. Anthony's Episcopal Church. We are a small church in Winder, GA and usually have an attendance of 30 - 40 people each Sunday. Ashlynn is one of our members.
For those of us who are lucky to have our health and healthy families, this is a wonderful cause to support.
- Christina Wilson
- Beth McIntyre